Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I’m 23 years old and I have been dealing with HS since I was about 7 years old. It started off on my inner thighs and both armpits. It has gotten much worse now that I’m older and it started coming all over my body after having my two sons that are 5 months and 18 months! I get it on my butt checks, my inner thighs , both armpits, on muni breast and under my breast and on my stomach, down my legs, just EVERYWHERE. I’m now disabled from it I’ve had to stop working. I’m starting to hate my life. I can’t leep up with my kids, I have open wounds everywhere and I’m ALWAYS flared up. I just got approved for humira, im scared of the side affects. Has it helped anyone? I’m tired of going to the emergency every other day getting my body cut open. It’s painful and it stinks. I literally have no life anymore.
HS is very rare in children and the elderly. I feel like if you haven't already you should see an endrocrinologist and allergist before going forward. Since it started so young (7) I'm wondering if there isn't something further they need to look into that might resolve your issue before using Humera or other hard drugs that may just cover the symptoms, Maybe it isn't HS. if you can determine a cause that might be better. I'd go to a reputable hospital even if it's a trip because it's worth it. Maybe Johns Hopkins (MD) or Cleveland Clinic (OH) or Mayo Clinic (MN, FL, other).