Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hi everyone.I am new to this group.I felt like I was all alone,when it comes to this horrible disease.I am 44 years old,and have had this since I was a young girl.I have suffered not only from boils..which range from the size of half dollar,to close to a baseball..But also severe depression &anxiety.And this past year,I have had severe nausea.And the past 6 months,have been vomiting every couple days.Has any of you dealt with this part of it?I have been to every dermatologist around.Even seen a infectious skin disease specialist..And was always given an antibiotic and a antibiotic ointment to put in my nose.None of that has helped.I haven't had 1 day,in the past 5 years or so..that I haven't had these boils on my armpits,breast,and groin area,and occasionally,inside my buttocks .The groin area is where I have them the worse!On the outside of my "Privates",And omg...the most painful,on the inside.And since I have them daily...I have started lancing them myself.The smell is best described as like something has died.And it leaves big,deep open wounds,after lancing.My sister finally found a dermatologist in the Kirkland clinic in Birmingham,AL.After going,I learned that I was stage 3 with HS.They tried a combination of antibiotics that made me deathly sick!I couldn't even function . And was told to use clinical deodorant,add clorox to my baths,no perfumed lotions,body spray,etc.And to use like the Tide free laundry detergent.But because I couldn't take the combination of antibiotics..They have set me up with a plastic surgeon at the same clinic to remove the glands from my breast,armpits,and groin area.I have my consultation January 5th.Has any of you had this done?If so,could you please tell me all about it,and if it has worked?Because they are saying that it's my only option.Please help me out!Thanks