Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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curiousenigma 01/12/2018

my dermatologist prescribed humira for me and i was like that's my only hope i'm gonna do it no matter what

i got the first dose which was 4 injections, after 2 weeks i should've got 2 injections, but at day 12 after the first dose it started wearing off the infection started reappearing and i got a new one in the down area never got it there before thank god it's gone now but the old infections are back... i couldn't get my second dose, humira is on low supply now in my country, thank god...

well it's not worth it, it's not a miracle drug, the result is not worth the side effects, i got a terrible cold that lasted long after the first dose, after i was okay my throat kept hurting me so much, then i got another cold, it wasn't so bad but my glands inflated, now i'm okay again but i'm have sinus problem that's another issue

yesterday i met a doctor specialist in infectious diseases, i already knew he was a doctor but yesterday he told me what's his specialties, he told me that humira far to dangerous for this condition, he told me to get the blood tests and he will see me, i'll try to keep posting updates of what will happen

Mufaris1 01/14/2018

Thank you so much for sharing your experience. It really helps when others share what they've gone through so that you can avoid making the same mistakes. I hope you continue to feel better

Marie.M 01/16/2018

I would love to hear what this doctor says when he gets back to you.

Mrsbrown 01/18/2018

It lower you immune system thats why it was easy and hard to get rid of your cold and when you stop taking it it make your hs 10time woser then ot was before and it cause death please tell your doctor to check for cancer this what i do before my doctor give me some meds i do my reseach on the medicine google will answer all your question.

curiousenigma 04/05/2018

yeah he did full examination on me and full blood tests
and right now im following a diet and antibiotic treatment been about 2 months i feel a lot better when i get a bump it's not painful and is small and drains fast

Papasmurf 05/18/2018

I have to ask do you have Diabetes type 2 or some other metabolic syndrome problems?

Lindysmom 05/23/2018

I do have diabetes type 2. I figure that doesn't help the healing of HS.

Lindysmom 05/23/2018

My problem isn't the boils as much as the fact I get holes in my skin that weep constantly. That really irritates my skin. I have been on an antibiotics on and off. This last time I've been on the antibiotic for several months with no improvement. My doctor suggested Humira but I don't want to go that root.

curiousenigma 06/04/2018

no as i said all my tests were great i don't have any problem, no diabetes no cholesterol nothing just low vitamin D and that doesn't effect HS

Humira wasn't good for me, but in some cases it might be the only solution, hope you don't have to reach that level

i just found out something new, im gonna talk about it in a new post

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