Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I've been viewing this site for the past few months and I love the support and advice that every shares on this website.I am now 20 years old and I was diagnosed with HS when I was 15 but had it a few years before. I've had two surgeries, one for each underarm when I was 16. It went well and I hadn't had any outbreaks besides a few small cysts on my inner thighs. However my freshman year of college I had a cyst under my arm and then my breast. I attend school in North Carolina so I decided to see a Dr at Duke Hospital. I was put on a "cocktail" of antibiotics from rifampin, minocycline and any other cyclines. My breast started draining last summer but are still open. As a student I learned that stress, esp around exam time, my period and alcohol(this is a recent finding) all affect my HS tremendously. I had Botox injections a few weeks ago and if that does not yield results my dermatologist is suggesting an IV medication used to treat arthritis. I also tried Turmeric pills for a few weeks but feel they were unsuccessful. I've just been bouncing around medications and want to try something natural. I have a great support system in friends and family and hope I can share with this site
I am refraining from alcohol this summer, trying a gluten-free diet and going back on the tumeric twice a day. Any other suggestions are welcome.
I am refraining from alcohol this summer, trying a gluten-free diet and going back on the tumeric twice a day. Any other suggestions are welcome.
Abstaining from alcohol, doing the tumeric and the gluten-free diet are a great start to healing the outbreaks. I hope you find more answers here and can live a happier, cyst-free life :)
all of that stuff so she eats veggies, fruits, chicken.....She has issues with beef, pork , and processed meats..... also, dont go to a family party and think the gluten in the air wont affect you...We went to a party on saturday and she got 2 bobos from my sisters husband baking bread the day before ....Also alot of gluten was served that day...Really irritated the crap out of me! Does the family care? Hell no, so will be limiting parties as it just isnt worth it....... Make sure you watch what spices you use..they put gluten in everything now days...... My daughter doesnot do soy, corn, wheat, gluten, rice, potatoes, she hates sweet potatoes so I give her pumpkin...... she is a very fussy eater so paleo is hard for me to do with her cause she wont vary her diet....Good luck and know that you arent in this crap alone...I find that antibiotics are a HUGE waste of time for this disease...She is on levaquin and got a clyndamycin shot the day we went to the party for a infected ear and sinus's and she still broke out.....so antibiotics are virtually friggin worthless! Now since she has been glutened...( thanks to the family) I put warm compresses on the bobo and also put at night bactroban, aloevera gel, zinc oxide 40% and also manuka honey....it does help...this is a hideous disease but a normal standard diet makes it impossible to keep under control..... You can eat very well on paleo and have a huge variety of foods.....good luck and welcome, tangerinebearxo
http://www.petitiononline.com/acure4hs/petition.html
It's all starting to make sense my doctors are amazed at how low my cholestorol is and now the diet I'm going to be trying - the paleo/Gluten free is all about fats. Maybe there is something about HS that makes our body's better at handling fats?