Imaspud ... I totally understand ... I am dealing with a flare that seems never ending. I have not had any form under my breast but have active cysts under the armpit which popped up after being lanced not once but twice in a week span ... after getting lanced on the bum ... I have had them in the groin and boy oh boy ... after surgery to remove the tracks I have been blessed that those little monsters have been at bay (KNOCK ON WOOD) I also do CBD gummies and oil for pain. Hopeful and praying you get some relief soon and no your not alone :)

Dewey53 thank you! Thank you for your reply. ❤️

Totally understand needing the gripe session. I've had more of these the past couple of months than any other. I do find that heating pads tend to help the really tender areas, plus taking curcumin and ginger tea sometimes helps alleviate some of that tenderness as well. It's hard not to feel like you're falling apart but when you're at the bottom, it can only go up from here.

Hugs to you, i wish i could find a cure too...i have had this for fifty years...just found out a name for it four years ago...good we have this site to be there for each other...i just read a post about something a person got in polland, sounded veryinteresting, available on amazon...going to look for it...

I just looked...it was posted by member deleted_user...maybe you can try it...

Thank you got all your kind words and support. I'm headed to the University of Utah Medical Center on Tuesday. I'll update you all.

I am so so so sorry. I am also so sorry that you have to be at work through this. I don't know exactly how it feels, but I did have acne on my face pretty bad when I was younger, but as you know, I am watching my 16-year-old daughter go through HS under and between her breasts and very bad acne on her face and her entire back. I hope just knowing you are not alone in this fight might at least give you support and you know you always have someone to vent to. I am at my computer most of the day, so anytime you need to talk, I'll be here.

You're not alone. Mine isn't as advanced but I spent last night fighting off tears because I couldn't walk normally due to a swollen cyst over my adductor ligament. The thing finally burst, praise the good Lord and I can walk without limping this morning. Afterwards I felt foolish for my little pity party-especially after seeing how much worse others' HS is.

I absolutely understand what you are going through. I have been dealing with HS since I was in my 20’s. I am now almost 60 and it has gotten significantly better but that is only because I have had multiple surgeries to remove the infected tissue so that I can have relief. Started with removing all hair follicle tissue under both arms, followed up with removing tissue from my left breast two times, then right breast. It went into remission for about 10 years after taking accutane. But returned about 10 years ago to my inner thigh and groin area. I have spent years researching it and what helps for me is to cut sugar and processed food from my diet.

I completely understand having long lesions in groin area I have been unable to walk and the pain is unbearable regardless of position I can hardly sleep properly due to the pain and require constant use of co-codomols and Tramadol pain killers