Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I believe Im in the third stage of HS...all the many of doctors I seen said I was the worse they ever seen. Im either nake or in a hospital gown when Im home, and when I have to go out in public I wear very loose dresses.Even though I immediately take my clothes off when I get home my infected areas always get wors...why cant I just go naked lol. No matter what clothes I wear out I always get a flare up and those keep me in bed for two to three weeks. My infected areas are under both my arms, waost, groin, panty line that trails down to to inside and outside of my buttocks. Even though I have the best pcp and surgeon they only can do so much without the surgery. I try not to move to much or wear clothing too much to try to eliminated more irritation and hopefully they will go down enough to begin my many surgeries. Does wearing clothes too long or period make your HS worse?
But I think our main point of focus should be to heal ourselves internally. From the inside, out!
Sorry to hear you are going through such a hard time, i have HS in most of the places on my body that you do so I really do sympathise with you.
Wearing clothes can make HS worse temporarily just from the rubbing and chaffing on the affected area which in turn irritates those affected areas, you are doing the right thing by wearing loose fitting clothes, hell go naked if you want lol.
I wonder have you looked into natural treatments Elisha? They have worked wonders for me. Antibiotics did nothing for me and I am reluctant to have surgery due to the potential risks so I was kind of forced to look at natural treatments due to lack of alternative options.
I didn't think there would be much but to my surprise when I actually did the research it turns out there really is a lot of great info and natural treatments out there. I came across a really good site called http://curehidradenitissuppurativanow.com and learned about things like the paleo diet, turmeric and tea tree oil treatments among a few others. Anyway I thought what the heck I may as well give it a go, so I now have a daily regimen of turmeric and tea tree oil treatments along with a radically changed diet which focusses a lot on raw foods. Ive been dong this for about 6 months now and I have seen a drastic improvement, my outbreaks are all but gone and when they do appear I can control them so much better!
Anyway apologies for such a long reply but hopefully this can help you.
Good luck Elisha!