Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
ok, so some of you know that i have been writing a book about my HS. but then i thought to myself, why does it have to be only about me. why not about YOU? so heres the challenge, if you would like to submit your story(s) into the book pick a topic from the table of contents, and email them to me at hailbrittany@yahoo.com. im still trying to figure out all the legal stuff with it. and we are going to need a new name for the book.
table of contents:
1. HS defined
2. our supporters
3. the people who dont understand.
4. treatments
5. my (our) storys
6. those who live with HS
7. depression
8. coming out
9. related medical problems
10. when you were diagnoised
11. the fight for the cure
12. the future.
13. intimacy
14. disability
15. doctor problems
16. how HS affects the body
17. surgery storys
18. home treatments.
thank you all who wish to participate in this awesome book.
table of contents:
1. HS defined
2. our supporters
3. the people who dont understand.
4. treatments
5. my (our) storys
6. those who live with HS
7. depression
8. coming out
9. related medical problems
10. when you were diagnoised
11. the fight for the cure
12. the future.
13. intimacy
14. disability
15. doctor problems
16. how HS affects the body
17. surgery storys
18. home treatments.
thank you all who wish to participate in this awesome book.
Hugs to all!
Steph
In my FB group there is a woman Maggie Spall that has mentioned recently doing a book and wanting people to contribute, maybe join forces, also SHari in the group mentioned to Maggie that she knows a publisher.
Just suggestions.