I have HS and I would cry all the time when I first had it. I was told it would get worse and there wasn't much I could do. I decided to get laser hair removal in my groin area where I had the most symptoms. Since I finished laser hair removal. I haven't had any significant flare ups. I do believe certain food affect it and I notice inflammation. But I have no new lesions and no new scars. I recommend laser. Though it is painful and expensive it was totally worth it. Also tea tree oil is the best remedy for flare ups.

You are not alone. Some nights I just lay in bed and cry. I have to forget that sleep is even an option. I just know it's not going to happen. Allow yourself to feel emotion is one thing. Going to a deep dark place is another. That's my issue. I don't just get upset. I go into a downward spiral. My pain does cause serious emotional distress. The only thing that helps me is coming on here to chat with others and trying new things. Trying to keep the hope. Trying new supplements. Using hot compresses. Heating pads. Taking zinc. Tuemeric. Making dermatology appointments (don't give up hope. The right doctor will come along and you'll be so glad you didn't give up). Confide in us here in your support group. I'm so sorry that you're struggling right now. Trust me, I know how you feel. I've been in so much pain that I can't even sleep, work, drive, go to class and so on. You're right. It is a nightmare. But you're not alone. Confide in us, a family member or friend if you can. Don't stop trying home remedies, asking for resources and demanding that you get the care you desperately need from the docs.

Best of luck to you. Thinking of you and sending thoughts of comfort your way.

Take care.

Thank u so much I'll look into the laser. A huge thank you to Steve I really appreciate your message it's nice to know I am not alone on this I will not give up I'm going to keep trying !

hey friend, please don't give up.
I'm 23 and i'm in stage 4. I've had this disease so long I don't even remember what its like to not be in pain. I suffer from HS and Crohns. I know what its like to feel hopeless. A little less than a year ago I tried committing suicide. The pain got to be too much. I was isolating myself. I often can't sleep because of the chronic pain. I'm losing a lot of blood from the effected areas, i'm exhausted and feel very alone. I would be lying if I didn't say sometimes I don't still think about it. I've developed a pretty nasty percocet addiction along the way trying to mask the pain, calm my nerves as well as get an hour or two of sleep. I know what its like just wanting to be able to do all the things that other people dont even think about. I've even lost some friends from the isolation. So when I tell you I get it..I promise, I get it. But we can't give up dude...we can't. Someone out there has an answer for us. But we have to keep trying. I hope you can find peace in all of this. I know it can get very heavy. Please find someone to talk to, you can't keep this inside it will eat at you. Wishing the best for you. I don't get on here too often, mainly because I don't like the feeling of complaining. But please contact me if you need someone to talk to.