Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
this hs is just killing me i,m only 18 and this is just depressing.hs why does this even happen the drainage out my butttocks is bad the doctor gave me medicine to help with the drainage and that does help alot and try to stop it.and it does help the doctor gave me some sleeping pills and i haven,t try them yet but i will get one before i go to bed.the other day my but was just leaking bad so much puss was coming out my wound up my buttocks and it hurts to sit down real bad this disease just SUCKS badly i get so stress out and i just have to cry this hs disease needs to go away
What are you using to cover the wounds in your buttocks area? I have been using adult diapers, not the most lovely thing in the world, but it does keep the oozing sores from ruining my clothes.
We all wish this disease would go away, and crying and letting it "out" is much better than bottling it up and holding it in. It takes strength to cry, much more than to not.
What kinds of things do you like to do during the times when the HS is not so bad?
Please let me know what kinds of meds you are on and how/if they are helping you.