Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
cromba
HS is an autoimmune disease. I have tried posting this on other sites and have been instantly banned because most of them do not really want you to find the answer. But I am trying again. An auto immune protocol diet will cure you of this awful disease. I suffered for 14 years until I did this. Aip works. I am happy to share. Let me know if you want to look into this.
smitty769
What kind of diet?
cromba
smitty769 It is called an autoimmune protocol diet or AIP for short. What we all have is an autoimmune disease caused by something known as "leaky gut" which can be put into remission by diet. People manifest autoimmune symptoms in different ways and because of different triggers, which is why HS has been so difficult to diagnose. You and I wind up with HS while someone else might end up with Celiacs, IBS or RA. The very best thing you can do for yourself is to get a copy of the book called "The Hidden Plague" by Tara Grant but you can also look into the work done by Dr Josh Axe on leaky gut. My preference is the book, because Tara has specifically had HS for 20 and figured all this out. You need to understand what is happening in your body to properly put this into remission. Supplementing with some of Dr Axe's work on leaky gut with add to that knowledge. These things probably cannot be cured, but can be put into "permanent" remission. Once you know what your triggers are, you simply avoid them. That is what Tara's book will help you to identify. I hope this helps and does not get deleted. Plese let me know you got this!
Hope17
Thanks Cromba.. I screen shot all this info and will pass it alone if I come across any other Hs suffers.. it's hard to identify us because we hide in plain sight.. I will definitely check into this.. I'm likes almost 20 years into this and have tried everything.. even had some drastic surgeries I now regret.. it still attacks.. so this will be refreshing to look into.. thank again
cromba
So true Hope17! I am about 7 weeks into her program and the difference has been amazing! My hair skin and nails are much improved as a side effect but the most amazing part is the lack of new breakouts and some very long standing sinus tracts are beginning to get smaller. Make no mistake this is not an immediate thing, but I had reached the point of being willing to try ANYTHING to stop this constant pain. One of the harder things I had to do was to STOP taking any NSAIDS, which actually exacerbate the problem. So initially it was kind of hard to tough though that, but now I haven't had to take anything for pain in many weeks. My husband has commented several times at how great my complexion looks and I have lost 15 pounds coincidentally. My bloodwork is perfect, which seems illogical at times, because AIP foods often go against conventional "wisdom". Best of luck to you and I hope you will check in when you have had a chance to implement this! My greatest hope is that everyone who suffers from this will find these posts and give this a try. It is worth it!
LadyBird
Cromba, I have been reading that book as well. I haven't made it to the diet part of the book yet, but I can't wait. I have stopped eating all sugar, bread, gluten, legumes, dairy and started eating paleo. I started 2 weeks ago. Once I get to the diet portion I will implement her diet as well. Just changing my diet has actually stopped my flairups, and like she said in her book, once you add back in your trigger, you flare. So far mine are alcohol, sugar and wheat. I had really bad blood work last week where my thyroid antibodies were in the 500s! (I've never had my thyroid tested before so who knows where I was before I started this diet) and like you I took NSAIDS all the time for these flairs. I never knew it could make it worse!
cindy1
The reason your posts are being pulled, is because you are highly uninformed on this condition. This is not an Autoimmune disease, I suggest you get educated on it before you put things like that out there for people to see. Your ignorance is very dangerous! Get in contact with a good Doctor and get yourself some education.
cindy1
I was wondering are in general a paranoid person? They are banning you because they don't want you to share the answer to an incurable condition? Really???? Hmm… They are banning you, because you are highly misinformed and they don't want people like you to give people with a very uncomfortable condition wrong information. You sound to me like a really odd person, looking for attention???? This is not an Autoimmune disease and where ever you heard that from, you were grossly misinformed. Put some energy into working on your own life and leave the people alone that are already struggling with this condition, evidently some can barely live their lives. For others like me where it does not define my life it is nice to share with people going through this unfortunate condition. But there are always nut jobs like you I guess. I don't know for sure, it's my first time on a site like this!
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