Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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HS.... Finally, I found what is working for me!

LelaWms
LelaWms

I am typically not the person that joins support groups but I feel that I must share this with the HS community. I have been living with HS for 6 years and went through surgery in 2016 to find that it really wasn't worth it. In April of this year I had a break out again and refuse to have the surgery again. I stumbled upon the receipe for the Master Tonic. After reading that it cures infections that prescribed medications do not touch, I figured that I had nothing to lose. I made it and let in sit 16 days... really only need to let it sit 14 but I have to say that I was a little hesitant since I have a weak stomach. On day 16, I woke up and the infection had tunneled into 4 places so I drank the first dose - 1 tablespoon. The following morning I was shocked at how much it seemed to have helped. I am 1 week into drinking it twice a day and the infection has literally almost cleared completely. PLEASE, if you feel that you too have nothing to lose, try it. To me it taste like a strong pickle with a hint of spice. There are a few versions of it but I used the one with turmeric. The recipe can be found on several sites- one being earthiemama.com . I did not follow the moon phase. I wish I would have found this years ago. In addition to the Master Tonic, I have a spray bottle of peroxide that I cleanse with several times a day since my issue is in the groin. Should anyone else try this, please share your story. I would love to hear your results. 

MegsMaaMa
MegsMaaMa
thank you LelaWms. If you would be so kind, I do have a question. I have a 16 y/o granddaughter who is a Downs Syndrome child and has HS. HS is a HORRIBLE condition. For those that do not have it - they would not understand. When she hurts - I hurt. But she is only 16 and she has downs - she is not drinking anything this hot to the taste. Have you been diluting it with something and has it worked? We are following the cinnamon & manuka honey protocol right now. My daughter in law puts it in smoothies. But I am not sure she could disguise this stuff enough to get Megs to drink it. What do you think please?
LelaWms
LelaWms
Hi MegsMaaMa- First off , I can relate and my heart hurts for her. I have not been diluting the tonic. The longer it sits the hotter it seems to get. The article said if it's too hot to suck on an orange or lime slice. I tried the orange and it did give instant relief. I believe that it is the ingredients themselves that helps the healing so if she is willing I would try. They say you can also use the ingredients to cook with so maybe that is an option. If not already, you may consider buying Emuaid in the jar (I have maximum strength) and soap. It is a little pricy but seems to help keep the hot spots under control. The scent is strong in the jar but the soap is not that bad. I pray that she finds some relief soon.
LelaWms
LelaWms
Hi MegsMaaMa, I've read more on the Master Tonic and people do dilute it by pouring into water and juices. I am still seeing forward progress in the healing and have had no new breakouts. Also, I used the Serrano pepper which is rated as medium heat. You may consider a milder one for your granddaughter.
jaerocc
jaerocc
I have had HS for 17yrs now. I've found that certain foods would give me my outbursts. Now that I stay away from those foods, I don't get them as much. In fact, I'm getting over an outburst right now. Just found out that clam chowder and/or honeycomb cereal makes me break out. Adding those 2 to my growing list!
LelaWms
LelaWms
Hi Jaerocc... are nightshades on your list? I hear they cause outbreaks. I need to keep a journal of food but have not started it yet.
MegsMaaMa
MegsMaaMa
Hi Jaerocc & LelaWms, My daughter in law has our little girl on the Paleo diet. She tried taking her off potatoes - which is tough - b/c Megan's favorite food is potatoes and gravy!!! But now she has gotten a list of do's and don't's from someone she is following and it is a Paleo diet. There is a lady on You Tube that my daughter in law follows that knows all about HS and she feels that the lady knows what she is talking about - so she is following her. I am trying anything that I think might work. So we are doing the strong cinnamon and the manuka honey along with the medi-honey for the breakouts. If you guys don't use that stuff - you really should try it. That stuff is amazing and you can get it on Amazon for a reasonable price. Just use it wisely - you don't need much and it works fast too. This is some nasty stuff right here!!! You guys take care and thanks for sharing. ~~The Tipton Family
warmaster1349
warmaster1349
Hi LelaWms - I just posted the following on another poster's message, hope it helps:

"I think the most improvement I've had with my HS has been by changing my diet. I've tried A LOT of things to try and suppress it. Turmeric, Zinc, Tea Tree Oil, Apple Cider Vinegar, Manuka Honey, countless creams, etc. Those things have mostly been good for post-outbreak for me to heal the boils or bring them to a head. Cutting out nightshades and dairy has helped me tremendously. Recently, I've read a lot about gluten and HS and the similarities between Celiac Disease and HS. That's where my road is now. A gluten-free, dairy-free, nightshade-free eating lifestyle. You need to find what works for you since everyone's body is different. Keep a journal and write what you eat down. Outbreaks typically happen within 24-72 hours for me after eating a "trigger" food. I've had HS since I was around 12 - I'm now 30. Don't feel discouraged. We're here for you. <(^_^<) Message us. :)"