Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Good afternoon everyone!!!
I just wanted to ask if anyone else has this going on...... I was recently told I have fluid on the brain and I am on meds for this and seems to be working as hte headaches are as bad as they were ... I couldnt walk talk sleep eat etc most days ....... So I was told I had to lose weight to have a permament pain free soluiton to this problem... ok that is great I lost 40 pounds in 2 months so far ..s oooooo my question is
Has anyone noticed that with weight lost you have had more active sites and sores???? I wasnt wearing as many bandages as I am now that I am losing weight? Any thoughts and input on this would be greatly appericated!
Thanks
Shelly
I just wanted to ask if anyone else has this going on...... I was recently told I have fluid on the brain and I am on meds for this and seems to be working as hte headaches are as bad as they were ... I couldnt walk talk sleep eat etc most days ....... So I was told I had to lose weight to have a permament pain free soluiton to this problem... ok that is great I lost 40 pounds in 2 months so far ..s oooooo my question is
Has anyone noticed that with weight lost you have had more active sites and sores???? I wasnt wearing as many bandages as I am now that I am losing weight? Any thoughts and input on this would be greatly appericated!
Thanks
Shelly
deleted_user
I'm not over weight and I still get sores. If I could lose more weight I would but I can't so I don't quite think weight is a key factor. I think it can aggravate it in some people but there are just so many unknowns with this disease... I hope you feel better! Maybe stressing over a new diet could be causing flare ups? I know when I have a stressful week I expect a bunch of sores to pop up over the weekend of the following week... -_-
deleted_user
I have noticed that both friction and sweat cause flares for me. so baey it working out, not losing weight.
deleted_user
I had my very first flare up this spring, after I had lost 30 lbs.
luvmytrucker
I really haven't excerisced yet thanks to the drhitting scatic nerve 2 times I been kinda laid up a bit.... I will notice more s this week how walking on threadmill really effecting it. And it the groin areaflarring up the others are at bay.
deleted_user
I was overweight when I was first diagnosed and had a subsequent surgery from an HS related surgery. Surgeon told me carbs can aggravate HS so I went on a diet and lost 40 pounds and have kept it off for almost 3 yrs. I still have bad flares right now I am fighting 3 sores on one side, on heavy antibiotics and cannot get a handle on it! This is probably the 6th flare in the last year. So, I'm not convinced the weight I lost helped but from what I see on here I think the surgeon who is an HS specialist was right about the carb/flare connection I had lost weight recently due to a stressful time so I was trying to gain back and I have been carb crazy!! Exercise also aggravates my flares, however swimming is great and water sports that don't cause the friction associated with other forms. Good luck hope my 2 cents helped ;)
deleted_user
*sorry I meant a surgery from an HS related Fistula not surgery*
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