Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I am so sorry to hear about your pain. I haven't had any surgeries yet, but as everyone on my other support site says - HS affects us all differently and so do the outcomes of meds and surgeries... I wish I could give better advice, but unfrtunately, all I can do is empathize. I am not sure if you are a member of other sites for support, but if you want to talk to others who have had te surgeries in the same area, you might want to try the yahoo group. It is very supportive and full of people who can give advice as well as the support we all need while dealing with HS. Please feel free to join us... it sounds like you could use any support you can get right now.
the addy is http://groups.yahoo.com/group/Hidradenitis/
There are over 4700 members and growing every day.... it truly is a great place and we would love to have you join us... They even have a real time chat link!
I hope that this is of some help and that we will see you there. If not, good luck to you in your fight to et proper treatment...it is a hard fight, but one worth fighting for!
Hugs,
Angel
Hugs, Cathy