Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hi... My name is Matt and I'm from the San Diego area. I don't smoke, but used to. I've lost about 80 lbs and still losing, but suffer from HS daily. Until recently I didn't even know what to call it, then my Dermatologist told me. Prior to today... I had no answers. I've been through about 12 different antibiotics and nothing worked. I have three that are linked together through a rope like tunnel under my skin. They say I have advanced Stage 2 HS. I was also told that I have Stage 2 kidney disease from my diabetes too. The pain is driving me mad! I've had this break out with the 3 that have been leaking and painful for a couple of years right at my belt line. I wouldn't wish this pain on my enemy... I've read a lot of people think of suicide and I can truly understand why. I'm thinking of trying this Paleo diet, hoping to seek a life without constant pain!
I'm sorry you are going through this. I wish I had some helpful advice but I am still working the trial and error method myself. The last time I did antibiotics they didn't work...might have been the wrong one though.
Just know you aren't alone.
I think we're slowly but surely gaining ground though. Treating HS with diet is still very new but it makes sense and is worth trying. Paleo actually includes quite a few foods that could be triggers for us so maybe try an elimination diet. The two most common triggers seem to be in the nightshade and gluten groups but could be anything really.
noiradle: I didn't realize that about the Paleo diet, I will look into it more. I recently read about the nightshade allergy and I'm staying away from those items. Recently before I even knew about what a nightshade was I was wondering if I had gained an allergy to tomatoes and potatoes... If I have too much of either I would just throw up in the middle of the night. Thank you for the info!
That's trippy if he was talking about you, he said there were only a couple of cases in San Diego total, cause it's so rare.