Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hello everyone, my name is Tina I’m 32 weighing in at 165 lbs and I’ve been dealing with Chronic HS going on 3 years now.
I’ve came across this group and wanted to see if you all would be kind of enough to help me find some home remedy to help with the pain. I’ve came across some groups but this particular page seem to have more information than the other’s I’ve viewed and most of all positivity.
I have the HS under both arm pits and my groin area. Never have I experienced a problem on my buttocks. I was told to have surgery done but was also told that it would be a 50/50 chance of them coming back and even worse if they do. So, I’m looking into other options by reaching out to you all for help.
I’ve came across someone talking about “Dermoplast” which I’ve tried and it has helped me when I have a severe case. I have a really bad case today and the dermoplast just isn’t working like It usually does bc it’s so bad this time. I also heard a little bit about BLUE EMU but never purchased it, wanted to read more about it before purchasing it. I’ve purchased so many products in the last 3 years that I have tons and tons of medications in my bathroom today that was just a waste of money.
The only thing that has helped me is Ibuprofen and the dermoplast. The hot towels under the arm or soaking in Epson salt hasn’t worked either. Is there something else out there that I don’t know about? If so please respond, thanks guys.
I was diagnosed when I turned 30 years old and I’ve been miserable ever since. The cyst that I have are under both of my arms at the moment. The only surgery I have gotten done is when they open it and drain it if you consider that surgery. After reading people stories about going through multiple surgeries its very discouraging to read especially for someone that has never had a broken bone in her body. Menstrual cycles are when I get the most flares.
When I get off work today I will defiantly go pick me up some Manuka/MediHoney Honey and incorporate that in my daily routine. Thank you very much, I really hope that takes care of the flares.
Warm towels for me unfortunately don’t work for me nor do hot baths I’ve heard it works with most so I’m glad that works for your granddaughter. I’ve never taken a PM pill (I hate taking pills if I didn’t have to take ibuprofen I wouldn’t at all) but it’s the only pill that’s helped me with the pain honestly.
Dermoplast is a pain-relieving spray is mentholated and provides soothing and refreshing relief from the pain. I use it when I have a really bad episode it works for me but doesn’t take the pain completely away 100%. It helps me get through my work day followed by Ibuprofen. I’ve also tried Hibiclens (Chlorhexidine Topical) which fights bacteria I use it in the shower it helps clean the cyst to prevent infection, I picked that up in a group I was in but I like to use things for a month before I judge it.
Thank you for your information I appreciate you taking the time I really do. Good luck to you and your granddaughter and May God Bless you both, thanks again.