Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I suggest putting a non stick gauze pad, if your skin (and most importantly wound) is unaffected by vaseline, neosporin could work too, cover the gauze with a thin layer of it so it won't stick to the wound when you take it off. Good luck!!!
It's extremely frustrating. I'm not on my second, stronger course of Anti-Biotics. The only thing that seems to be helping is keeping it covered during the day with a non-stick gauze pad and paper tape to secure it to my skin and taking Tumeric and Zinc.
I've been taking 900 mg of Tumeric and 50 mg of Zinc a day. It seems to be working well. My GSW hasn't healed, but it's doing MUCH better than it was a week ago.
Avoiding baths is definately a good idea. It just keeps the wound open and wet.
Take care!!
Here is how I found this amazing cream!
When I worked in a nursing home, we had a cancer patient come to our facility from another facility who was bedridden and had the worse bed sores I have ever seen in my life, nearly clear to the bone on her backside.. they looked much like our gaping holes..we used Silvadene on those areas, and on her stomach fold too where the cancer had eaten through the flesh and left a gaping wound, she healed up so amazingly well that I was shocked! I can't say for absolute certain that this Silvadene will help you or not, but if I were you I would give it a try and see how it works.
Not so sure I would use Vaseline on my skin though, it is pretroleum based and will not allow the skin to breathe and may very well further clog your pores and create new cysts!
Hope this helps!
http://www.drugs.com/mtm/hibiclens.html
What it does is dry things out and make them heal. I purchase it from a pharmacy and he orderes it for me in a 32oz. container. Be careful not to pay too much for it. Look around. My son uses it for his cystic back acne also.
After I wash with this, I put a gauze over the top with a product called Boileze
http://www.privateway.com/boezepareoif.html
What this does is has a numbing agent in it that helps with the pain and keeps the gauze from sticking. I purchase it at Walgreens...Generic form. It helps alot with small cysts that appear and hurt.
I have had this disease 30 years, so I have tried it all. I hope this helps a little.
Chris
What I do is keep those areas extra clean with Hibicleans,and cut out the pad part of those adult diaper things,they work much better than gauze and tape for those in the groin area,and for the ones in the armpits paper tape and non-stick gauze.I have to change them a couple of times a day but it is better than it leaking onto my clothes or worse onto other parts of my skin which breaks out into a rash if it does.
And I hear you on the water thing,burning.We have chlorinated water (city water) so it burns like a mother if they're really bad.Well water isn't as bad,but still burns a bit.
I'm going to be soon going to a dermatologist so if they offer me something new to treat mine that hasn't been done to me already I'll be sure to post it and how effective it's being.I'm not swearing off surgery,but it is definately the last on my list of HS to do list.I'm gonna try everything else I can before going that route.
Makes Peeing/Defecating difficult....do not wish it on my worst enemy. I wish doctors would say more than "It is what it is". or "Sorry there is no cure for you."
The one in my groin took 3 years to heal "AFTER" Surgery. I know how you feel. So sorry for your pain.