Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
for the last 2 years since hs started i was on rifadin as my dr said it was helping but now i can't find it any more
so i called my dr last thursday and fixed an appointement for this thursday
also someone i know will help me get humira on the government cost, meaning i won't pay for it, but there is long procedure of paper work first
so feeling a bit optimistic, lets hope for the best
people lot worse than my case, people dealing with hs for years since their childhood, we had a support group together away from any drs or drug companies, those who were using it they got better a lot better... a guy couldn't stand up straight because of hs was tired of living when i saw him he was okay and this drug was the only thing that helped him after 30 years of being fed false hopes
i don't care what it does all i want is normal life i'm tired of not being able to dress or do as i want, im sick of the pain, the smell, the look of them, i want to be able to wear no sleeves i want to able to dance and workout or even just move my arms without pain i want be close to people without smelling it, no one ever said anything about the smell but i smell it so of course they do and i hate it, i want to be able to make out with a guy without the fear of the ones between my breast bursting suddenly
so this drug is my only hope, and i looked it up a lot, nothing to fear been searching about hs since i knew its name tried every home remedy every antibiotics... now it's either that or surgery and i don't want anymore scars so humira it is, surgery even my dr said it doesnt help hs will come back