Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Scheduled my first dermatologist appointment today for September 8th. I am excited but also nervous. What should I expect? Will they do tests on me or just look? I get HS on my groin so will she have to look at that as well?
My doctor listened to me describe my symptoms and asked me some questions, such as when it started, how big the sores got, and if anything made them worse. Then he did a quick exam. He talked to me a bit about HS and mentioned that he had a few other patients with HS. He created a treatment plan for me, although he cautioned me that there is no cure.
I had a follow-up appointment 2 months later, and my symptoms were better but not as good as he wanted them to be. He gave me a referral to an infectious disease specialist at the university, but my summer is chaotic and I haven't gone yet.
Overall it was much more respectful and easier than I expected! I wish I had gone earlier.
I hope your appointment goes well!