Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I consistently see people posting on here about being unable to get pain medications from the doctors, and this not only infuriates me but baffles me as well. Living with HS is bad enough physically on the outside and mentally on the inside, but having to deal with chronic severe pain is enough to wear anyone down and make them have horrible thoughts.. it did me at least, I was ready to cash in my chips, I couldn't take it anymore. Please talk to your doctor and tell him/her that you feel this way.. that the pain is just diving you crazy and you need something to take the edge off of it. Total pain relief is not ever going to happen, and make him/her understand that you are awae of this fact.. but that you just need some type of pain control that makes life worth living and makes the pain tolerable. There are SO many pain medications out there that will work wonders for you, omg you have no idea.. insist on this if nothing else it will help you live with your HS until you do have surgery (if you choose) and if you choose not to have surgery it will improve the quality of your life to the point that it improves your mental well being as well as your physical well being. Being in constant uncontrolled pain is enough alone to cause more and more flares, just from the stress of dealing with the pain, so this cycle will not get better unless you get some pain control. Absolutely insist in some pain medication and do not take no for an answer, no pain medication is NOT an option at this point!
I do work in the medical field. Md's won't give pain meds becasue too many people are abusing them. They don't understand the pain of these lesions unless you express it to them. It's so important to have a good relationship with your doctor. I love my doctor and I actually refuse pain meds becasue I personally don't like them. Please look around until you find a doctor that is willing to work with you and understand you. I know it's difficult to find a doctor that understands HS, but I do believe they are out there. Don't give up and you have the right to be in control of your medical care. Don't make pain meds your #1 thing becasue they then think you are a drug seeker. It's just the way it is in this world of medical bliss we live in.