I would try to find a good Pain managment doctor. Obviously your Doctor doesn't Get it. I can understand your surgeon only perscribing pain meds for awhile. Your regular Doc should be Monitoring your pain levels and have you on a pain treatment plan.

YES, you are getting pushed around.

What needs to be STRESSED to these Doctors is that HS is also a CRONIC PAIN CONDITION!

I just hate reading post like yours and so many others here that are in soooo much pain and are getting no help. Just pisses me off!

Perscribing tylenol in any form for this is a joke!

I also have nerve damage unrelated to HS. But my Doc gave me 60, 10 Hydrocodone for the month with a refill. And if I don't abuse it or ask for more, he will probably refill it. I thank God he Understands, I really needed them, I had a wicked Earache for over a week (nerve damage).

Like I said See if their isn't a decent pain management clinic in your area.

Good luck Sweetie, I hope you feel better soon.

I am so sorry to hear that your docs don't understand the type of pain you are in - you can bet if it was them or one of their family it would be different...
I don't have any pain relief advice, but if you are still flaring, give tumeric a try - it reduces the number and severity of outbreaks and maybe you can avoid further surgeries and thus, the pain from them... It does take time for it to accumulate in your system, but many people in the 3 yahoo groups I belong to are finding more control over their HS using tumeric... even me! You can get it in capsule form at walmart or nutrition stores or if you can stand the taste you can get it even cheaper at the grocery store - mix it with tomato juice and drink it, or with peanut butter... whatever works... if you use the capsules, try to start at 3 a day - about 1200 mgs... I sure hope this helps you somehow...
For more support you can search yahoo groups for HS worldwide, HS natural healing etc... we would love to have you there - they are very helpful and have ton of files that may help as well... even including applying for SSD benefits, and more pain relief idea's that may help. You can also go to HS-USA for a list of doctors with HS experience by state if you are in the USA... other area's (like here in Canada) have very few Dr's that treat HS...
Sorry I can't help more, but your pain struck a chord with me and I had to let you know that you are not alone in this. And as the other person suggested... see if there is some kind of pain management clinic in your area that can help advocate for you while you are struggling with this nasty disease... any & every little bit helps!
Hugs from Hamilton, ON
Angel

I went through this SAME crap a few years ago with my own doctor.. pissed me off and made me literally crazy from pain.. so I went to the doctor in a flare and absolutely lost my mind with her.. I told her that I HAD to have SOMETHING that would allow me to TOLERATE the pain, I didn't want total pain control and I realized that total pain control for me was forever out of my grasp, but that IF I didn't get the pain to a tolerable level then I would literally go insane and jump off the roof of my house because I just could NOT take it anymore. Of course she looked at me like I was a raving lunatic (I WAS) and of course she immediately suggested mental hospitalization and/or medication, lol... can't blame her there. Anyway, I then told her that I was NOT crazy from anything BUT pain and that if she would help me get it to a tolerable level then I would be A OK. I also told her that there was a huge differance between drug addiction and drug dependency, while I am not addicted I DO DEPEND on pain medication to improve my quality of life and make it worth waking up in the morning. She prescribed me hydrocodone, which I took until I developed a tolerance and then "graduated" to stronger medication. You must iterate to her the fact that you absolutely can NOT live with the pain and that you MUST have something that will make the pain tolerable. Give her an example of how bad your pain is.. burn patient, labor, hit by a semi.. whatever, to get her to understand that this pain is horrible and that you can NOT take it anymore. Also tell her that she is the only one with the key that can unlock a manageable life for you, and without proper pain management you might just go insane. I know how I went about it is extreme, but I was at my wits end and desperately needed her to understand how much pain I was in, forever I had felt like she "treated" me just to appease me and with a tiny bit of "oil" would shut this squeaky wheel up. I was sick and tired of being in constant pain and feeling laughed at as I filled my Tylenol prescription.. hell I could probably take the whole fkn bottle of tylenol and NOT feel ANY relief. I hope she wakes up and will isten to you and you plea for her help. Good luck getting better pain control, I feel horrible for you right now.

thanks guys. ya im going to talk to her when i take my step daughter in on thursday.

I was on Percocet after having my c-section and even that barely helped with the HS pain. I can't imagine how many mg of narcotics it would take to dull the pain of a really bad flare up.