Melanieann, Please cheer up, because there is hope! You took the first step by coming here for support! There are several things you can try to help with the spots. Showering with Hibiclens to keep the lesions free from infection, using tea tree oil (I always keep it in stock!) & myrrh on the lesions for their antibacterial properties, and finally, I definitely recommend asking your parents to get your pediatrician/primary care physician to recommend a dermatologist. They can place you on antibiotic therapy when you have an outbreak, give you medication that helps immediately with swollen lesions, and give you pain medication to help you manage your pain during outbreaks. Depending on your severity, they may consider other drugs to help you long term. Surgery is a treatment, however, I've read too many articles that say it is NOT a cure. Read up on it, try different things that work for you. Have your parents explain to your school nurse and teachers so you have people in your corner. I don't like to talk about my lesions, but I do share it with my supervisors so they know why I'm not at work. I hope this helps you. Let me know how your progress goes!

During a flare, vinegar baths can help a lot. Add 1 cup white vinegar to a clean bathtub full of warm water. (Use more vinegar if you have a giant tub). Hop in and fully immerse the affected areas in the water and soak for 30+ minutes. Hop out and pat dry. The vinegar kills germs and helps dry things out and the warm water helps with pain,

Many of us have found we have a food related trigger for hs. You can do the autoimmune protocol diet (or a modified version of it) to determine if certain foods are a trigger for you. The main food groups are gluten, night shades, dairy, eggs and nuts. The modified AIP diet is easier to do... Completely eliminate 1 group from your diet for 3 weeks and monitor for any changes (lesions healing, no new lesions or significant slow down in appearance of new ones). If things start to clear up, you've found a trigger food. Eliminate it from your diet moving forward and flares will happen much less often if at all. if no change, move onto eliminating the next food group and monitor for change. Repeat until you've eliminated all of them at some point. Complete elimination of the food group is vital...just reducing consumption is not enough. Think of it like an allergy - it doesn't matter if you eat a little or a lot of the food you're allergic to, the reaction still happens.

If you haven't read it yet, get a copy of the book called the hidden plague by Tara grant. Quite eye opening and far ahead of many primary doctors and even specialists when it comes to hs. Good luck to you!

Have you guys ever had heat rash with HS