Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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Bmorefrank 11/19/2017

I think about this daily so I'm gonna post about it and if anyone who wants to reply with 5 feel free. It's just 5 things at the top of my list I miss from when I was healthy.

1. Camping= use to love going camping but last time I went I got blood poison from bathing in stream.

2. Hiking= loved just driving around, finding a trail or path and go for a long hike.

3. Riding a bike= would ride for 20 miles a day sometimes but now can't even sit on seat without extreme pain.

4. Working= loved my job and gave 110% and was great at it. Had 50+ associates on my team and we had fun doing it.

5. Playing golf= going out and playing 36 holes enjoying peace and nature's sights.

JoshM 11/20/2017

1.Camping-if something happens to my meds or cant shower properly for more then 24hrs the sores get super inflammed
2.Riding Bike-I rode all the time during the summer preferred it over driving.
3. working- I was able to get on disability but I'm getting so stir crazy.
Sweating- Not being in extreme pain after getting sweaty.
4.Relationships- Finding a woman that understands the smell is not from not showering but something that is out of my control.
5. Making good First Impressions- this goes from meeting women at the bar, managers at potential jobs, or even meeting up with old friends.

Destinee22 11/21/2017

Hey, I'm trying to get the word out about what I just discovered! Drinking a TON of Cranberry juice every single day stopped the reoccurring cycle of my HS. I am no longer in pain and I feel great. I don't know if this will work for you and I'm not saying this is not a cure but it wouldn't hurt to give it a try.

P.S When I stopped drinking the Cranberry Juice, the HS started back up again so I started drinking it again and it stopped

I really hope this helps :)

Bmorefrank 11/22/2017

Thanks I saw your post about cranberry juice. I went on all juice and water diet years ago trying to get as much vitamin c as possible but it did not help. I can't drink alot now because I get kidney stones whends I drink alot of vitamin c. Thanks for suggestions though. Hopefully it will work for others.

slindsey 11/22/2017

5 things i miss
-wearing a bathing suit without being in pain or embarrassed of my skin's appearance.
-swimming/jumping into lakes and waterfalls after a long hike there.
-riding a bike.
-wearing shorts without being in pain from my skin rubbing against itself.
-being able to be out/ go out without worrying about bleeding onto my clothes or being in excruciating pain.

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