Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
You mentioned 4 visits to a dermatologist. If it was the same doc all 4 times: DUMP him/her! Putting a child into a poison bath is insane, if not altogether malpractice. Read the label on the bleach: it could harm her eyes, damage sensitive vaginal/vulvar tissues and more. This is once again more ignorance from the medical community: that we are "dirty" in some way. You are correct that many lesions start FAR below the upper layers of skin. There are many indications that HS has a genetic/hormonal component. Bleach can't fix that!
Even the suggestion of giving HUMIRA to such a young child has steam coming out of my ears! Some of the side-effects could possibly have life-long consequences. Google-up Humira's side-effects, please! It's shocking.
Lancing is now considered BAD for HS as it opens us up to infections of staph, strep, and even "flesh-eating bacteria". They usually close neatly after draining on their own. A 33-year old woman recently died in Michigan 2 months after having a "boil" lanced on her thigh. I'm not trying to scare you, I'm just totally alarmed that your dermatologist has NO CLUE what he/she is dealing with. In 40 years I've had only 2 lesions go septic after draining on their own, and then happily took a broad-spectrum antibiotic.
I'm about to turn 57 and have had HS for 40 years. If I were young again I'd have had a huge area of skin grafting done (the only "cure") in my entire groin area: buttocks, inner thigh, labia, the works. Once and done! I've missed out on love, friendship, opportunities, jobs, dreams, desires, even... you get the idea.
Please research the zinc dose carefully for a CHILD before having her ingest anything. There's plenty of zinc in a multivitamin. Probably the same goes for the turmeric, too. Don't experiment on a child: Some things cannot be undone.
I'm sorry if this post seems jarring or scary. We care for everyone in our group, and admit that I have a weak-spot for children: I lost both of mine for lack of factual info.
Gonna go have a "good, cleansing cry" now, then will be sending positive vibes to you and your precious daughter.
Rebecca
I also would avoid Humira for someone so young.
I'm so sorry your daughter has to deal with HS at all, much less at such a young age. I worry every day about either one of my children developing HS. Every heat bump and pimple that has ever crossed their skin has been inspected by me like a crime scene investigator. I am comfortable with checking my daughter out, but my son is older now (a week or so away from being 12!) and although I feel awkward checking out his areas...I'm still gonna do it. God forbid something pop up and I not be aware of it, because my kids are like me, they don't complain and have to be in rough shape when they DO tell me something is wrong.
I do hope you can find some relief for your daughter. Just make sure you research appropriate dosing if you plan on trying tumeric and zinc.
Sending healing prayers to you and your daughter.
Hugs for all....
@Angel - Thank you so much for your post. I feel so bad to think you as a young girl had to deal with this on your own. You are a strong woman.
I think i know WHY she has it, she has always insisted on wearing tight clothes, pants, shorts, underwear. We fight about it all the time. I NEVER thought it would come to this, but I am fairly certain this is why she has it. So please, don't wear anything tight ! So hard w/the Skinny jeans, etc out there. It blocks the follicles/glands and it turns into HS.
A friend of mine told me her son got it. He was 20 and had to show her his groin (so embarrasing) because he didn't know that to do. She thought it was herpes, but it wasn't. Took him to Derm. Told him HS, as a result of working out alot, wearing tight biker style shorts, sweating. Fr him, it cleared up. Doc said do not wear anything tight, sleep naked. I am throwing out all of her tight clothes today. Need to be aware of what the triggers are, tight clothes, sweat, etc...
What kind of underwear do women find most comfortable w/HS? The line is going to hit where the HS is, no matter. Unless you wear boxer shorts.......
Thanks
My heart breaks for your girl, but please, do not make her feel this is something she's caused. It's a hard disease and the lonliness can kill you. Don't make her feel like she's to blame.