Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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spaceteddy 03/02/2013

Where did all the previous posts went? I looked at my post history {kind of a diary to me} and saw to my shock that everything has gone. Does anybody knows how to get it back? When i type in remicade in the search discussions bar everything before 2013 has gone. How can this be?
HELP

deleted_user 03/02/2013

i don't know spaceteddy I just recently got back on here myself. Maybe the site updated theirsystems or something I'd look on the main page and see if there is anyone thereyou can contact.

Its so good to see an old friend on here again too! How have you been dear?

Love,

Dus

spaceteddy 03/05/2013

Hi Dus,

I am doing really well. Remicade is helping me enormous. Are you still on humira? Is it not working because you are on hydroccodone? Is that the same kind as oxycontin? Nice to see you too.
Greetings and hugs,

Spaceteddy

Ps I see on the bottom of the page you can go back to 2008. So not all info is lost. The info is very precious because of the rarity of this disease and no known real cure.

deleted_user 03/11/2013

still on humira. yes i'm on hydrocodone. no its different than oxycontin. And humira still works with pain pills

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