Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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spaceteddy
spaceteddy
Hello everybody

Two months ago i started taking antibiotics (clindamycin and rimfampicin) and had a bad reaction. My stomach is fucked up since then. I can`t even swallow morphine because i puke it right out. And morphine is the only thing that helps me coping with the pain. The last three weeks i couldn`t get on this forum because i couldn`t sit straight only sideways because my two outerlabia were swollen beyond recognition because of the tunneling under them. I`ve been to hell and back and was crying uncontrollably every day. I can`t walk far and when i do i`m in enormous pain. I can`t take care of my dog properly so today my mother who lives3 hours away has come to collect him This has devastated my soul. This friday i go to hospital for probably a take in and get antibiotics trough IV. I need a break from this awful pain I`m enduring Mentally i`m really fucked up and my soul has been crushed. This is no way of living and i long to be dead.
Just thought to give you an update,
Bye
deleted_user
deleted_user
I wanted to start off by saying that I am praying for you.....yes it can be frustrating sometimes but you can make it! I had hs since I was 16, I have emotional highs and lows. I just wanted to remind you that there is always a reason to live. I am rooting for you!
deleted_user
deleted_user
I'm sorry you're hurting this bad. :o(
HS in the groin/ on the labia is the most horrible pain I've ever experienced. Hang in there and let us know when you're out of the hospital.
deleted_user
deleted_user
hang in there hun. I've had this since I was 8, though not nearly as severe as my daughter has. She's had 17 surgeries now and it IS a living hell. My heart breaks because I can't "fix" my baby. What's even worse is the knowledge that I passed this onto her genetically. She's had no teen years, no opportunity for boyfriends, dances, proms etc. Even high school graduation was taken from her and she ended up getting a GED because she could do that as she was able to. She's 23 and it is crushing my soul that she still suffers greatly on a daily basis. We've tried everything. Turmeric and Zinc, Metformin, excising, wound clinics, surgeries galore, IV antibiotics, oral antibiotics, prescription powders, creams, gels. Natural remedies...I say all of this to tell you that even through the worst of it you must find something to focus on. Having support, friends and loved ones around you supporting you is the most important thing. Don't let it manifest into something worse and perhaps you need some medication to help. Also, if you can I strongly encourage you to seek counseling. There is nothing wrong with seeking help!
deleted_user
deleted_user
Sorry that you are feeling so bad. I'm so scared when I hear how bad others have HS, knowing I can one day get there ;(
I pray you find something that helps you like turmeric shots helped me!
tangerinebear
tangerinebear
I understand your desperation and pain.. I am so sorry this disease is such a bad one.....I am very overwhelmed sometimes as my daughters caretaker...... I know this disease can take you so down mentally, physically and spiritually but dont give into all that...try and stay sane with the simplest o pleasures.....I will pray it lightens up and you do a bit better....so sorry; Tangerinebear xo
deleted_user
deleted_user
I just want you to know that while reading this I had to stop and check to see if I wrote it myself. I don't knoe how to deal with the pain & drainage from my labia. Some days I don't even het out of bed even though I can't sleep. I'm on the same two useless antibiotics. I too long for death. I only get through everyday because i tell myself the next day will be better.