I too feel really lonely sometimes. I'm 21 and I've never had a boyfriend and I've never been out on a date either :( I am trying my best though to accept it and not let it hold me back from getting close to people. HS was and is still the main reason why I don't even think about dating because sometimes I feel like no one will want to be with me, but in the few weeks I've been on here I've learned that this is something I am going to have to live with and I can't let it hold me back from the things I want out of life. I wish you the best of luck, there are wonderful people and lots of great advice here I'm glad to be here. Welcome to the group!

I have to say also that its comforting to know that there are really others out there somewhere who are like me(unfortunately for you)...although I don't know anyone personally. I'll be the third to say I haven't been with someone in a long time...but its not so much because of HS...I think I just intimidate women....and people for that matter.

I wonder what it is that I say or do...even when I sit in the bus stop people move away from me...I shower everyday...so I don't know what it is. I've been told that I should smile more...but with so much problems and probably the biggest one being HS you don't really feel like "smiling".

I guess I am used to the loneliness
In my opinion its not so bad... falling inlove can be one of the most beautiful things...or it can go completely wrong and you'll end up in even worse shape...I wonder if its even worth it...

Well I guess with all this rumbling I am trying to say "Hey, you're not alone."

We're here....somewhere. :|

Life starts new everyday and tomorrow could be the day lightning strikes :)

Hope it's OK if I share my experience on this... everything I've read is really familiar to me... "how could anyone accept me"..."I'm some sort of monster".."I smell".. "I'm grotesque"

Never had any intention of even trying to meet a girl who would accept me.

Story goes...

I look OK in clothes.. everything is hidden and my school reunion was coming up. I really wanted to go out and have a good time with my school friends knowing I didn't have to worry about them knowing about or seeing my condition. I will admit, the excitement of seeing my old friends gave me the enthusiasm to lose some weight and try and look as good as possible.
At the reunion I exchanged contact details with some of the girls and/or friended them on FaceBook.

I asked some of them out to dinner, with the intention of just getting out of the house with some company... one accepted, and we have since developed a sort of relationship. I told her about my condition, but one night she still wanted to have sex...

Without getting into the nasty detail.. the first time was difficult... i did not feel attractive and actually felt sore. But MAN I was so excited I had actually had SEX again!

I've been seeing her for a few weeks now.

I bathe before she arrives, before we sleep and as soon as I wake up (almost). She has seen most of my body and I am comfortably a stage 3 on the HS scale (1. really 2. fucked 3. up).

But there is someone else out there that can tolerate me.



So guys.. I really fucking hate appearing to be sympathetic..but having HS and a partner is not mutually exclusive

Welcome everyone, glad to have found this spot as well. Have a tendency to lurk generally, but can be encouraged to spout off from time to time.

I can definitely sympathise & relate to where all of you are coming from when it comes to feeling horrid about my HS, but in many respects I've been lucky. I'm 36 now & have been in my current relationship for ten years. We had a great sexual relationship for the first 8 years, just so you know my HS didn't even develop until about 6 years in. It's only been in the last couple of years where my HS unfortunately got in the way of us being able to have more typical kinds of sex. We've had to become a bit more creative I suppose ;)

Thanks, all. It is nice to know that I am not alone in the things I am experiencing, although I will say again that I wish I WAS alone in it because that would mean that (at least) the rest of you were HS Free.

crmay1: I had to laugh at the last line of your entry. You sound like Becker. LOL

I started pretty much in stage three from about 17 to now and I went to a tavern for nachos. I frequented this tavern my ENTIRE life and moved out of the area and was back for the nachos(i know, I know, healthy is what your thinking lol)On my way into this bar in a town of maybe 200 people (where everybody knows your name) I locked my keys in the car.

I saw a hottie that was WAYYYYYYYY out of my league was there. I fully intended a one night stand. Wasnt sure how I was gonna pull it off since this was my first time feeling like that was all i would ever get. Newho to wrap it up. We sat up all night talking and never got to the naked part and he pretty muched moved in after that.

We have been together for 8 years now and had our share of struggles as we both have issues with depression but I married my best friend and he drains all my owies for me. He used to rub my back for an hour to get me to sleep when i was completely covered in owies and if I can find someone by locking my keys in the car, then surely there will be somone when you least expect it too. Feel free to friend me and see what my body looks like. I was a disaster just one year ago.

I have been on Humira for a year and I have maybe 5 owies on my groin active now versus my entire body. Just thought I'd share there are people out there willing to accept you for you!

http://health.dir.groups.yahoo.com/group/hs_relationship/?v=1&t=directory&ch=web&pub=groups&sec=dir&slk=10

I found this surfing around yahoo...I hope the link works.
It doesn't seem like they have allot of going on but if any one here is interested. Give it a shot.

I like Becker too azkel ... but I'm not asking you out on a date yet

I must say it was shocking for me aswell, at 51. and single, I said to my self no way is this going to stop me not now! So I went and had a Me Day made a mad dash to the Salon had the works done, Came home turn up the music pour myself a glass of wine , got dress meet the girls and enjoy myself, Meanning to say I left yesterday behind me, And start reliving my life, as i'm telling you this,i'm going out again with a lovely person, and was shock that was a thing call HS.. so If there's someone for you they will accept you for u, remember Be U ,, and keep smiling