Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hello all,
I've been suffering with HS for six years now. Among other things, Accutane was suggested. I'm not agreeable to trying it because of all the potential side effects, I am however considering adding a vitamin A supplement to my diet since this is the main ingredient in Accutane.
Any thoughts or feedback is welcome!
I've been suffering with HS for six years now. Among other things, Accutane was suggested. I'm not agreeable to trying it because of all the potential side effects, I am however considering adding a vitamin A supplement to my diet since this is the main ingredient in Accutane.
Any thoughts or feedback is welcome!
I agree with your reluctance over taking Accutane.
In the 80's when it first became available I was given Accutane as treatment for HS and the side effects were terrible.
My toenails fell out (they grew back), my teeth were ruined.
The effect on the HS was nil- I've had many surgical excisions since then (not trying to discourage you, just truth).
Also, I believe there is a class action suit against the makers of Accutane.
Stay focused on diet, body weight, and managing negative stress, which seem to have the biggest impact on the frequency and severity of flares.
I wish you a great life with the best health you can muster.
I wish us all a stem cell therapy to kill this insidious disease!
Terry
The absolute best to you!