Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
Until then, I would research the current tx and the current clinical trials. There is a handful on here, who have done or doing non interferon trials. Have you been following their progress?
What are the "red marks". The only skin conditions I know are related to chronic HCV are spider angioma. You can also get lichen planus on your legs and feet.
There are four stages of liver fibrosis not 6. Stage 4 is called cirrhosis and then there are 4 stages of cirrhosis.
Your biopsy should give a good idea of where you stand with your liver.
I'm not sure what you mean by a C scan. The usual imaging for the liver is either and Ultrasound which only shows shape and shadows, not fibrosis and a Fibroscan.
Talk to him about the new Interferon free drugs that are very effective and only 12 weeks in duration. They should be approved later this year.
See this link and perhaps take it with you to ask his opinion on.
http://www.gilead.com/pr_1771657
Best of luck!
I never heard of red marks on the chest having to do with hcv either. Like Kramer said, you have to wait for biopsy & other test results before you & your dr can decide what tx & if you can wait.
Take a notebook with you when you go to the dr. Write down questions as you think of them, & write down answers as dr gives them to you. There's alot to know & consider. If you can bring someone with you to your next appt to help you listen & remember, that would be good.
@ we- I think if it were me - unless there was a compelling reason to treat immediately -I would wait. Tx w/Incivek can be really tough and the drugs are so toxic. Many will never be the same again after treating w/IFN.
I believe most doctors today who are well informed would not recommend triple/Incivek unless there was a particular reason for it.
If your doctor recommends tx, get another opinion.
Good luck in whatever path you choose.
http://hepatitis.about.com/od/diagnosis/a/Metavir.htm
I don't understand why he doesn't review all your labs/studies before you come in. If he waits to read the pathologist and the radiologist reports and then comes up with a plan while you are there for your appt., how much thought did he put in it?? Discussing different options is what I would want to discuss and not just one plan.
Stage 3 out of 6 fibrosis, wait! I read an article that half the pts. with hept C are requesting they wait and even @ 50% of docs are doing the same thing.
Interferon is rough. I heeded the past expereince of others and told the clinical trial coordinator, nothing but all orals for me in a trial, or I will wait. My Angel called me with an all oral.
The 8 folks in the trial that I am in, had/having minimal sides and most folks, none! Good luck on the decision. And remember whose bed your doctor may be sleeping in :)