Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
18 yrs ago i did that heinios pegulated interferon/ribavirin the worst side effects,my breast cancer chemo was a piece of cake.after 6 mths being on it i relapsed,got very depressed ,swore never to do anything unless theres a 95-100% cure. i started harvoni june 12th, oh yes only those 5 or so side effects,"some people dont even think their on it" verbatim from gastro nurse.as trixdaisy posted even the FDA does not print any other side effects in a 12 page listing on everything about harvoni.I'm 62 ,headaches would start when i woke up to it or in the early evening ,like clockworka whole body and mind and emotional upheavel,headaches with sweats, chills,major irritibility,fatigue,,mood swings, lets see,muscle cramping toward the end of treatment,(charlie horses)sept 3rd.i would get into bed when they would flush over me and sleep 14 hrs easliy.i would be alright in the morning and early afternoon,then the werewolf effect would come over me and i had to go to bed and not move.my moods swings would make me feel hostile and arragant,like angry at anything and over sensitive to noises, on my nerves, i was on my nerves. i need to know how long does HARVONI stay in the system.3 days off and still same changes are taking place. but hell of alot better than the old horrific treatment which doesnt really clear genotype 1a,1b a crap shoot. the genotypes are also geographic. meaning if you are of an american your sure to have 1a-1b,from europe is another story, easier to clear.
trixiedaisy
splashsoul I really appreciate your honesty! I am guessing you read my post "Harvoni nobody wants to say" . I am the type of person that wants to know ahead of time what will be. Not go into it blindfolded. I feel you are one of the few that have been honest and actually listed ALL your side effects. I personally think that everyone compares this treatment (Harvoni) to the old treatment. Being the other one was so horrific this treatment is a piece of cake that everyone claims. BUT it Harvoni) still has its side effects and being they did go through the old treatment they just don't mention its true side effects because it isn't as bad as the old one. I truly look u to the people who did try the old treatment and think how brave they were. But at the same time I really just want to know what to expect. I never did the old treatment. When I first got diagnosed I went to another support group on line and that's when the old treatment was going on. I read the nightmares and decided I don't want to try that (scaredy cat) and told my gastro /hep that I was not interested. I felt so bad for these people but for me the percentage of clearing the disease wasn't convincing to me. And it would seem like if I am remembering right that they would do this for months and months and then in the end they still had Hep C. So really what I am getting at is being a lot of others have done the old treatment and say how horrible it was they say this is nothing. But to me either way I myself want t know the truth about Harvoni. You pretty much gave a good description . And all the emotional side effects are what scares me the most. I very easily get depressed and I just don't want to go there. I live alone and its very scarey when you get severely depressed . I can relate to the 14 hours in bed sleeping cause I do that now. I can imagine with Harvoni I probably wont ever get up. I wonder will I be ok with side effects and living alone ! I know there are a few here doing it alone but it doesn't sound like fun. Thanks for your post !! Very grateful !!
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