Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
Yesterday I was very tired, and my fingers would not warm up. I actually felt cold everywhere, even in my bones, my lungs, my brain!
My little dog could tell something was wrong, and came and cuddled up to me in the bed, he always knows when someone in the family is sick!
I will find out what my HGB is, this tuesday. I dont want to have to riba reduce, and I'm already on 40,000 units a week, of Procrit.
it does seem like many people do riba-reduce, but I only have 9 more weeks to go, so I want to try to maintain the 1,200 mgs of riba. I dont feel THAT bad, I can still breathe, I'm just rly curious as to how low I actually am now!
Anyone else in the Hemolytic Anemia Cub feeling chilly, in hot weather?
It makes it easier for me to sleep...but then again, I have tow kids to take care of all summer, I CANT sleep in the day-time, at least not all the time!
My little dog could tell something was wrong, and came and cuddled up to me in the bed, he always knows when someone in the family is sick!
I will find out what my HGB is, this tuesday. I dont want to have to riba reduce, and I'm already on 40,000 units a week, of Procrit.
it does seem like many people do riba-reduce, but I only have 9 more weeks to go, so I want to try to maintain the 1,200 mgs of riba. I dont feel THAT bad, I can still breathe, I'm just rly curious as to how low I actually am now!
Anyone else in the Hemolytic Anemia Cub feeling chilly, in hot weather?
It makes it easier for me to sleep...but then again, I have tow kids to take care of all summer, I CANT sleep in the day-time, at least not all the time!
Procrit didn't do anything for me. I had to reduce riba, then my dr cut it out completely for 10 days. My hemo had gone down to 7. After cutting out the riba, and being off incivek for a couple of wks, hemo came up to 9, then I had a pint of blood right away too, and it came up to 10.4. Back on 4 pills/day of riba and hgb (hemoglobin) is at 10.2.
I will stay on reduced riba for the rest of tx. Had to cut pegasys too, from low wbc.
I just looked over my labs, and it doesn't look like they are testing for low (or high) thyroid in my comprehensive metabolic panel lbs.
Perhaps I should have my Thyroid tested, with my regular PCP,if this is being over-looked by my Tx Doctor? I know Tx does cause permanent thyroid problems sometimes~
hyperthyroid can also cause anxiety and hypothyroid (low) can cause depression...and also losing more precious hair, which is also temporary once you're back in the target range.
I have a CBC tomorrow, so we'll see where I'm at then. As the day wears on, and more pills are taken, I go downhill. My doc said that once the Incevik is done, that he'll probably raise my Riba up another 200 mgs but that's it. That puts me up to 600 per day and he said that seems to be the magic number. I just started week 8 and so that means less than 5 weeks left of the Incevik. I can't wait to start the last box!
Also, my doc is keeping a very close eye on my thiroid. Every other CBC has a TSH test as well.
most dr's don't tell you this, but you're supposed to fast before your tsh. When I was going to my endocrinologist for this, he said to definately fast. That's kind of hard when your doing incivek, but you could have it done right before your w 2nd 'fat fest' of the day.
See if you see a tsh test on any of your lab repts.
I will ask on tuesday. Today I am having alot of difficulty breathing, and very little understanding, from my family.
I think it is mainly the Victrelis causing the anemia, so I dont really understand why reducing Riba would help.
CassyKate, fyi I finished the 40 weeks UNDIE, and am now 12 weeks post going for my first viral load tomorrow