Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
If it weren't for bad luck I would have no luck at all!!! I received a phone call at work yesterday from my hep dr's office. The Dr's nurse informed me that the blood work I had done 2 weeks ago for the 24 week v/l test had t obe redone. Seems the lab were I had the blood work done didn't take enough blood. Good lord, did these people get there degrees or what ever they have to get to prick a person with a needle in a figgen cracker jack box? This is the second they have done this to me. I guess I am the fool I went back after the screwed up the first time!!! It just makes me so angry cause I said to the woman are you sure you have done everything? Please don't forget to freeze the blood!!!! If I could do the blood work myself I would!!! At least then I would know it was done properly. Nothing worse than getting a phone call like that at work on a Friday which just happens to be your birhtday, feeling like a bus hit you and left you on the side of the road. At least I got to have a shot last night. Not the kind that I really wanted though. LOL . Thanks for listening all, please dont be to hard on me!!!!!!
Hugs
Debbie
Hugs
Debbie
I hope the extended wait yields very good news for you.
Sorry this happened to you (again)....Raise hell!!!!!!!!.....and TRY to have a good weekend:):)
BUT I never get in anybody's face when they're about to jab me with a needle and suck blood out of my vein.... just the opposite. I'm sickeningly sweet, flattering, all that....not taking any chances.
FOUR MONTHS and two doctors later I still don't know anything. The bx report had some scary words for sure. Saw great hepatologist in July - a month later I was told I needed another bx, because.... the local idiot(s) didn't get enough tissue! I almost puked. A week after that he closed his Las Vegas clinic.
I mean, can't a radiologist tell right then and there that there's not enough tissue for analysis? Huh?
So now I am going to see ANOTHER doctor on Sep. 17 - 70 miles away. I will not not not have another liver whammo punch, so the next one will be transjugular even if I have to go up to Vegas for it. They gave me NO sedation for the May bx. They are going to knock my butt OUT for that next one, which has to be done.
TWO biopsies in what, five months. Knowing I have bridging fibrosis, moderate to severe piecemeal NECROSIS - but knowing nothing else - no grade, no stage. Not knowing how far gone my liver is - four months after a bx that was botched? Not treating until "we" know what's going on? Talk about stress.
I think I win the prize on this one.
Here's what I found the lab instructions to be:
Testing for cryoglobulins is complicated by lack of reference range, standards, and stringency in maintaining testing temperature conditions. Identification of cryoprecipitate can be critical for patient care; therefore, correct testing conditions are crucial for reliable cryoglobulin testing. The patient's blood sample should be kept at 37C initially to avoid premature precipitation of cryoglobulins and thereby decreasing the yield for subsequent identification. This could cause a false negative result. After warm centrifugation or warm cell precipitation, the clear serum is observed at 4C for formation of cryoprecipitate. The cryoprecipitate is then washed in cold buffer, and the resulting precipitate is warmed to 37C and subjected to further analysis by immunodiffusion and immunofixation.
Keep giving the blood until they get it right! Good luck!
Love,
kelly
You must have borrowed my black cloud! LOL.
You know I hate going in the first place much less going for extra fun! Unfortunatle that seems to be the norm anywhere you go for most anything you need. I also agree with Peaceful You don't piss off the cook, cop , doc , flibotomist. ECT...ECT..
Hang in
Bill