Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
I HOPE there is not such a big problem when the Sovaldi/Ledipasvir "one pill wonder" comes out in the fall. It WILL be FDA approved, so insurance companies can't balk at that, as they can with off-label Sovaldi/Olysio, BUT the doc said that the issue is the cost. The insurance companies are being bombarded all of a sudden with orders for Sovaldi, and they simply don't want to pay for it. Gilead has GOT to take the price down! If they don't, many even with insurance will be denied. NOT RIGHT! Just because the "cure" was found, and of course millions want it, they say "no, it's too expensive?" Outrageous.
Whew! Thank you for this post. I won't freak if I get one of those letters. My insurance has paid for all 12 weeks, so I will toss it.
So when used with the FDA approved tx for Geno 1's (which means Interferon and Riba), yes Sovaldi is FAR superior to Oly. Sovaldi + Riba is FDA approved too, but it's a longer tx and has the poison Riba.
When I get my last shipment of Sova/Oly tomorrow I will be shouting, "HALLELUJAH" ~~~!!!
It is ABSURD for them to request approval for RXs already filled!!! Mine have been all filled and paid for my my insurance any my co-pays ....
We all get one month at a time but they know it's a 3 mo treatment. How can they approve it and then stop approving midstream?? I see that as basically as fraud and EXTORTION - forcing patients to have to pay cash for the remainder or stop midstream??? This is INSANE!! I hope someone sues them! GRRRRRR!
Marilyn - TWO MONTHS!?? That must be a record! So sorry. Sure hope this insane pricing and insurance crap does not occur with Ledaspivir.
I posted their contact info, but you can simply google them. Phone calls to legislators are tracked and they do have an effect! I will be calling both again and telling them about these letters. It may very well be illegal for gilead to stop payment for anyone who has already been approved and/or started treatment.