Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
Hi everyone, I've been away for a very long time. Just wanted to check on everyone. Anyone know how Marilyn is doing? I know she was going through some bad problems almost a year ago. Has anyone had any side effects from all these new treatments? I also heard that the eliminated interferon and the other bad drug that was taken with it.
I have been 1 year post treatment and doing good. Finally no pains or feelings on right side (liver).
Took me almost a year to feel so good. LIfe is good.
Think my RA is better. Have some pain, but nothing like I used to have. If I keep busy, my life is good.
Can't complain of any side effects except for my thyroid was ruined from the old treatments, interfeuron.
Have to take a pill daily for that.
But at least I made it!! Thank God....
Still hanging out. Been SVR since 2012. Getting a normal life(I guess?)
It is a blessing for the folks who haven't treated that Interferon is not used now and Riba is not used often. Can't believe we survived it.
Marilyn's computer was down for a long time, but she is back from time to time.
How's it going for you these days?
Hope all is well
Prayers,
Bill
Please do not get me wrong. I am clear & free ( according to my blood work) from the virus & I am grateful but I am a bit scared as I thought some of these symptoms would stop. I have been off treatment now since OCT 17th.
I still at times have the chills, too. I feel like I just cant get 'with it'... I am a mother of 6. I have a ton of responsibility. I am really trying to enter back into everything slow & take baby steps but this is hard when I am a bit confused as to what I need to do to get myself back on top of my life.
I have very little info on how long this will last or if it is going to stay. I need some info & would be so happy if I can make contact with another to see what their effects after / Post medication was. How long? What were they? Am I normal?
I also experienced a very hard & high heart beat at 140 BPM resting. I would always have to excuse myself to get my heart rate to calm. I experienced a lot of confusion & the sweat from rest was like a slime. I felt like it " Glazed me" so to speak. I would stare at the shower & just freeze from it , not wanting to get in but feeling awful if I did not.
I would take my meds with about 30 ft grams of good fats, drink 2 qt of water with every regimen & run to bed so fast... then Pray to fall asleep before it kicked in. If I did not I would feel my heart beating so fast that I would really have to pull deep to focus, breath & go to sleep.
I would fall asleep if I did not position my head in a way where it was harder to hear the blood rushing through the veins in my neck & head. After I woke after praying myself asleep at these times, I would be bruised from head to toe making it hurt to even be touched. my body ached from my blood rushing SO FAST.. I was so scary. With hardly anyone to talk to that understood & feeling so bad I did not even want to ask... really I just dealt with it.
My ant-anxieties, it would boot right out of my system even making 105 Clonopin a month NON detectable in my system. Crazy HUH?
Never less.. I would love to communicate with someone or help another, whatever it may be..
For me, I do need to ask.." What is going on with me?"... I am SO happy I am better but where am I at at this moment? I need to know I can get back to normal & if I lost more than vision, I need to know what & where to start my healing..
Thank you..
Ange
You sound like me!! I thought I was the only one "freezing to death".
I do have thyroid problems (found out after trying interfeuron/Riba) but did finally clear after doing Sovaldi/Riba.
The thyroid pills help some, but I am always freezing cold. I can identify completely with you "re the shower". I take showers at weird times of the day "when I am not freezing". I even heat the whole house up, just so I can get in. Hubby thinks I am crazy.
I wear wool socks and a hoodie in the summer and he is sweating.
I am constantly "reversing my words" when I speak and it is embarassing..... Or I use the opposite word of what I mean.
This has been going on for a while now, and my kids laugh, but to me it is not funny.
It will get better (especially the rushing feeling) that was from the Riba. They reduced me to 400mg as my body was giving out from the 1200mg dose.
I took about 6 months to get the Riba out of my system. I can sympatize with you. I am age 61, so my kids are older. That will help with the "rushing feelings of blood" you speak about.
I also have been thru that 'laying down and hearing my blood rush and throb.
I have learned the hard way that I have to keep up with a very healthy diet and water - which I hate - I just wanted this disease behind me.
I wanted to be "normal".....well I have to work at it.
I found out 1 year post treatment that I still have Fatty Liver and I have to lose weight.....I am trying so hard - walking and now my back hurts so badly, I could just scream from the pain.
NOthing takes the pain away.
Back in the day, doctor had me on 9 2mg ATIVAN a day and that is what I needed to feel "normal".
It gets better - it just takes forever, even up to a year or longer to
clean out our livers and the medications.
Some do a lot better than others. I can go from "feeling on top of the world" to feeling awful, like today.
God BLess, you are not alone.