Hepatitis C Support Group

Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.

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ConoIpsaro 02/01/2013

Now that I've completed TX I was curious to find out if anyone or everyone was able to complete the entire 48 week TX without missing a dose?
I was able to go the entire time with out missing or skippiing a shot wihich I did every Friday evening before bed. Also never missed a beat with the pills either. Not sure if would make a difference but was wondering if anyone did and if they think it effected the outcome or the symptoms, good or bad??????
Nothing else to do right now since I am up as usual late with my feet burning like they are on fire. I know people with kidney problems are known to have neuropathy but not liver people. Anyone else experience this? The foot doctors that are supposed to be the wizards or smart have no clue? Just have to lay back down and wait until three, four or sometimes five AM before I pass out. I wonder how long I can go with gettng two to three hours sleep a night???? Tried Neurotin and Lyrica and both give me bad dreams bording on nightmares. Starting to put a kink in my armour... PLeasant dreams to you all..

rangervs 02/01/2013

Cono, I do not have the answers of your questions.
Just bumping it up so it doesn't get lost.

deleted_user 02/01/2013

WElcome Conol :-) Yes I have the same problem with my upper thifgh on left leg and unfortunally the nerves dont ever come back so this is something if uyou have the same as I do you need to get to Doc pronto. It started like it was asleep then it felt like worms right under my skin that was crawing around and then it went to a permamnt burning sensation. I was diagnosed with (Peripheral Neuropathy) and was discibed (Gabapentin300mg three a day and while it doesnot stop it it does stop the burning and it Stops it from getting worse. So copy these words down and talk to your Doc about them I looked them up so I oould spell the disese and meds for them properly.

deleted_user 02/01/2013

I don't know anything about the burning feet problem. It sounds horrible. Have you been to a neurologist?

I completed 48 3x/incivek a couple of wks ago. I had to stop meds twice during tx because of anemia once, & too low wbc the other time. Stopped for about 8 days once & maybe 5 or 6 days the other time. Plus my peg was reduced to 90 mcg for quite a few weeks, and reduced riba to 800 almost the whole time. Luckily I was undie when I had my bloodwork done. Praying I will be svr in 6 mos. and praying you will be too.
Are you able to get any excersize? Sunlight & excersize are good for moods & help with sleep.

ConoIpsaro 02/01/2013

I tried all those things. Have seen Podiatrist, two Ortho foot doctors, neurologist, and even the neuro surgeon who operated on my lower back in 2006. Physical therapy, lots of ice and wearing clog shoes are other remedies I've been trying regularly. The foot doc said he THINKS its Neuropathy but the EMG does not show any nerve damage. I exercised regularly throught out TX and before. Nothing seems to have worked. My last resort is to go back to surgeon to see about trying injections for pain managment. Only thing possible left to try. Just hoping that I don't have to resort to pain meds in the future.
Not going to let it get to me for now as I have to many things to do and to many places to go and so many years left. I like to think I have a very high tolerance for pain but getting only two to three hours sleep a night I'm affraid is eventually going to wear on me. For now I try to sleep when I can whether day or night. A lot of power naps along the roadside are in the future. Thanks Ranger for keeping it going... Maybe someone will have other suggestions Take Care

fishboy316 02/02/2013

Hi Cono, Did have just after finishing TX very irregular sleeping patterns but not the foot problems. Was getting 3-5 hours a night. Sucked! You gotta get those kicks fixed so you can go work the PA trout streams! Or come to annapolis and go striper fishing!
Praying for you!
Bill

dragonars 02/02/2013

Same here never missed a dose 24 weeks. Relasped 6 months. Feet burn like hell go numb sometimes Get a little better with time but never goes away completely. Brought it up too two docs they looked at me like I had two heads. It's been 2 years so I guess I'll live with it there not going to admit its the interferon. Doc said I could do 48 weeks tx no thanks. It's tapered off the last couple of months. If I knew all this in advance I would have never done tx too late now. Good luck peace

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