Hemolytic-uremic syndrome (HUS) Support Group

Hemolytic-uremic syndrome (or haemolytic-uraemic syndrome, abbreviated HUS) is a disease characterised by microangiopathic hemolytic anemia, acute renal failure and a low platelet count (thrombocytopenia). The classic childhood case of HUS occurs after bloody diarrhea caused by E. coli O157:H7, a strain of E. coli that expresses verotoxin (also called Shiga toxin). The...

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EllynHopes 07/22/2008

Hello, when I was a year old, I was diagnosed with HUS. Does anyone know any long term effects from the disorder? My husband and I are trying to have another child. We have suffered from multiple miscarriages.

deleted_user 10/13/2008

I had HUS when I was little. I've had high blood pressure and been on meds for it ever since then.
I did have one son who was born at 30 weeks and 1 day because I had preeclamsia. After having my son, I continue to have high blood pressure, yet it is controlled now. My OB has suggested waiting at least 5 years for my body to heal before we have another child. Dec.07 I was diagnosed with chronic kidney disease, stage 1.
I do believe that HUS has long term effects, and it is something that needs to be studied more.

deleted_user 03/17/2009

my daughter had hus about 6 mounths ago i think there are long tereme effects but i dont think they no what they are

deleted_user 07/09/2010

i had hus when i was 6 and am now 18 it is my opinion that it is the lifesaving treatments such as steroids that have more bothersome long lasting effects i was on steroids for close to a year and it caused my ligaments to be extra stretchy causing knee issues my ribs to randomly pop out of place and now im having issues with my hands the disease however caused me to have kidney damage which is slowly becoming kidney failure and high blood pressure which is very hard to find a medicine for without sideeffects and for someone who is not elderly or over weight

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