Hemolytic-uremic syndrome (HUS) Support Group

Hemolytic-uremic syndrome (or haemolytic-uraemic syndrome, abbreviated HUS) is a disease characterised by microangiopathic hemolytic anemia, acute renal failure and a low platelet count (thrombocytopenia). The classic childhood case of HUS occurs after bloody diarrhea caused by E. coli O157:H7, a strain of E. coli that expresses verotoxin (also called Shiga toxin). The toxin enters the bloodstream, attaches to renal endothelium and initiates an inflammatory reaction leading to acute renal failure (ARF) and disseminated intravascular coagulation (DIC). The fibrin mesh destroys red blood cells and captures thrombocytes, leading to a decrease of both on full blood count. HUS occurs after 2-7% of all E. coli O157:H7 infections. Adult HUS has...

0 Online

    Son had HUS

    Hi!  My son came home from the hospital at the end of February from having HUS.  He was in the hospital 6 weeks.  He is doing so much better now!  I am wondering if anyone's child  had to go on insulin for a while and then the pancreas healed itself completely?  For the last week we haven't given him any insulin, but he will still get high blood glucose readings if we let him eat too many...
  • TheMer

    Daughter had HUS

    My daughter had HUS 4 years ago and had kidney failure and on dialysis for over a month. Her kidneys recovered but ever since we got home from the hospital she has wet the bed. She was 6 then, now 10 and was potty trained before age 3. As a result of the HUS she is type 1 diabetic, has chronic pancreatitis and had her gallbladder removed. Her endocrinologist, GI specialist, nephrologist or...
  • deleted_user

    Longterm side effects of HUS/ecoli

    Hello, My name is Heidi. I'm the mother of a 12 yr old daughter who is 1 1/2 years post HUS. We are looking for answers to many questions. While we have very minimal kidney damage her body is not the same. She has been almost bed ridden for a year. They have done TESTS and TESTS and can't tell us what has happened, but they do admit her body is not functioning. I will tell our story here,...
  • deleted_user

    hi all

    my sister was recently diagnosed with this syndrome. she is 42. If there are any adult sufferers on here. Please contact me. Thank you.Becca
  • EllynHopes

    Long term effects of HUS

    Hello, when I was a year old, I was diagnosed with HUS. Does anyone know any long term effects from the disorder? My husband and I are trying to have another child. We have suffered from multiple miscarriages.
  • deleted_user


    I would like to talk to some one that has had hus