Hi! My son came home from the hospital at the end of February from having HUS. He was in the hospital 6 weeks. He is doing so much better now! I am wondering if anyone's child had to go on insulin for a while and then the pancreas healed itself completely? For the last week we haven't given him any insulin, but he will still get high blood glucose readings if we let him eat too many...
My daughter had HUS 4 years ago and had kidney failure and on dialysis for over a month. Her kidneys recovered but ever since we got home from the hospital she has wet the bed. She was 6 then, now 10 and was potty trained before age 3. As a result of the HUS she is type 1 diabetic, has chronic pancreatitis and had her gallbladder removed. Her endocrinologist, GI specialist, nephrologist or...
Hello, My name is Heidi. I'm the mother of a 12 yr old daughter who is 1 1/2 years post HUS. We are looking for answers to many questions. While we have very minimal kidney damage her body is not the same. She has been almost bed ridden for a year. They have done TESTS and TESTS and can't tell us what has happened, but they do admit her body is not functioning. I will tell our story here,...
my sister was recently diagnosed with this syndrome. she is 42. If there are any adult sufferers on here. Please contact me. Thank you.Becca
Hello, when I was a year old, I was diagnosed with HUS. Does anyone know any long term effects from the disorder? My husband and I are trying to have another child. We have suffered from multiple miscarriages.
I would like to talk to some one that has had hus
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