Hemochromatosis Support Group

Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.

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IL_Cattivo 01/06/2019

I have just received my diagnosis of hemochromatosis. Is there anyone who has good advice on dietary supplements that one can buy that helps? If someone has also been successful with a diet plan then I would be very happy if someone shared it with me. :)

sptrout 01/06/2019

I hope your hemochromatosis is not too bad, Mine was mainly discovered by having a high ferritin level during several blood tests (600-1,000), and a genetic test. After 8 blood donations my ferritin level dropped down to 13, which is too low, so now I am trying to get it back in the normal range, Oh well,,,,,,,

As for site with good information, you can do an Internet search and find many sites with good information. The site at the link below is one that I found that was useful and written by a doctor that has hemochromatosis. So he has first-hand knowledge.

I have not had to change my diet since I am trying to get my ferritin back to normal, Later I image that I will just be giving blood a could time a year to keep it under control.

Good luck!

https://hemochromatosishelp.com/

toolean 03/08/2019

Hi sptrout, Dr Eric Lewis isn't a medical doctor but a Naturopathic Doctor (ND).

brucekingfield 03/17/2019

I felt much better following a diebetic diet plan. I do take folic acid, magnesium, zinc and b-complex vitamins to go with my phlebotomiies.

Large meals are not a good idea. Avoid simple carbohydrates and keep salt at 2g per day.

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