Just by chance I recently found out I have Hemo. My cousin tested positive with a random test and other cousins came up pos.-this to me, was an answer to a lot of my ques as to what could be wrong with me. Somewhere last month I tested pos after being told "I doubt you have this.Your symptoms could not be related." I am the type of person who just 'knows' her body. Since my diagnosis, I have had two phlebotomy's. With my first one I felt ok. With the second-my already feelings of dizzy,nausea,headache and fatigue-became worse. I have been so tired that even taking a bath wears me out.

At this point I am overwhelmed and can't even seem to focus on what I want to convey...I feel useless because I come home from work,lay down,cook,lay down and do whatever it is I need to do...and lay down. I feel like I'm always tired. I'm not sure these symptoms are Hemo related or if the phelb's are making whatever it is worsen. I've had the symtoms for about two yrs now and tend to wonder if maybe i have an inner ear prob or vertigo. I've taken Bonamine (motion sickness med) and all that does is makes me more tired than anything. On some days it seems to lessen the dizzy. I've also been prescribed Lorazepam for nausea-again,adding to fatigue. So I tend to not take these meds BECAUSE i'm already so tired.

I've had some issues with depression and anxiety in the past and know very well what that feels like. But recently I've been doing really good and have felt like i'm 'in control' of 'all of that'. I have been on meds for this and have not been on any consistantly for many yrs now. So when my Drs tell me my reason for my symptoms is depression and anxiety...it kind of overwhelms me when I KNOW this is not true. It seems to me this tends to be the answer to a difficult diagnosis. I can see why one would assume such a thing because when I tell them I'm extremely fatigued,dizzy,nauseated and my chest hurts from being winded...that sounds like anxiety,panic...but I assure you-this is different.

So my Dr recommends I start taking Wellbutrin. I'm hesitant because for me, that's covering up the problem-sweeping it under the rug. I worry about side effects such as lack of creativety,sexual dysfunction,weight gain,dependency,etc. That and the fact that I am VERY sensitive to meds.

This past Sat. I ended up going to the ER for my symptoms. I was so dizzy and fatigued that my husband and I were worried. They ran an EKG, did chest scans and bloodwork and had me do balance tests. The EKG,chest xrays and bloodwork seemed fine (on the prev weds my blood pressure was 87/53,so we skipped phelb for that day and this week), my BP was fine-but my balance was off to the right. I was given lorazepam,darvacet (i have joint pain,as soon as my phleb slow down,i'll see an RH Dr) and mechlazine (sp?) ,IV fluids and sent home. I understand my symptoms are 'general' and could be pretty much related to almost anything. I just need to talk to someone who might be feeling the same or has gone thru feeling like this due to Hemo and is now feeling better. I need some hope.

I've gone thru quite a bit in my life time-so I recognize things when they are wrong and i feel like we are missing something. THIS gives me reason to be depressed...

I'm sorry my entry is a novel...I am known for many words...but I sure can use some support and advice right now:)