Hemochromatosis Support Group

Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.

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How many got their ferritin down to under 50 but s

jbelar
jbelar
My ferritin got down to 22 so I am in maintenance but i notice by iron is still elevated and my iron sat% will not remain under 50%. Does anyone else have low ferritin and high sat %?
bronxpreston
bronxpreston
Yes, I have had that on a number of times. Not sure why that happens. Don't recall seeing an answer to it. It was noted a number of years ago with the Iron Overload Assoc.

I just cut back on the red meat even dark meat from poultry. Take milk or calcium to decrease iron absorption and don't drink citrus drinks (like lemonade) with meat.

JMHO