I have not heard anything but recently asked an oral surgeon about this before I had surgery on some removals. He wasn't sure as he had just recently (in past 6 weeks) heard of Hemochromatosis. He wasn't sure but was going to look into it a little more. If I hear back I'll be sure to post those results.

I can't remember where I read it, but I HAVE seen that it affects your dental health - seems like it is more the top teeth than the bottom teeth. My husband finally had to have what teeth he had left removed. Granted, he didn't take REALLY good care of his teeth to begin with, so I'm sure that helped the deterioration progress. Hope you have better luck than he did. Hope this helps.

I just had a dentist appointment for a cleaning and wanted to add HH to my history just in case it was a concern. Dentist never heard of it so I explained what HH was and he said if it was not on their checklist then it is of no concern but obviously if he had never heard of it how would he know if HH is a concern or not.

I was diagnosed with HH in March of this year. A few months later the left side of my tongue was sore. So sore it was very painful to swallow. I went to my dentist first, he referred me to an oral surgeon and he referred me to an Ear, Nose and Throat. No one had any idea as to why my tongue was sore. A friend told me the same happened to her mother and she found out her B12 was low. I went to my PCP for labs and my B12 was normal. Tongue pain comes and goes. I went to my dentist for a cleaning. I was having a problem with pain in a tooth on the left side upper. He couldn't find anything wrong so he referred me to an endodontist. I told her my story about the tongue being sore and the pain in my tooth. She was surprised that no one had referred me to a neurologist. She checked my tooth, said it was fine. The pain was not coming from a tooth. The pain I have in the tooth area is like electrical shock that lasts for about 3 seconds. Have not seen the neurologist yet. Probably after the first of the year. Has anyone else had any tongue or teeth problems?

Hi laughalittle,

This is an interesting question.

I think my dental health was affected by the increase in my serum ferritin levels between the menopause and diagnosis - a period of around 4-5 years.

I experienced tenderness in my gums and some bleeding for the first time in my life following the menopause and the problem gradually became worse over time.

The tenderness and bleeding gradually reduced as my ferritin levels went down over the last year since I have had intensive treatment for the HH. Since the my ferritin levels have been below 50 I have not had this problem.

I wonder if the increase in iron allowed more bacteria or different bacteria to thrive in the mouth environment.

I managed the situation by going to the dental hygienist more often, using a softer toothbrush, using dental tape and dental brushes daily, changing my toothpaste and mouthwash to one recommended for bleeding gums. This all helped but my gums remained tender and bled easily until my ferritin levels were normal.

I will do some research on this.

Christine

I have recently been dignosed with HH, Ferrin level at 572. Have not had any Phleb yet., still waiting for my doctor to recommend me some therapy. He only recomend no red meats and iron-fortified foods. I am already gluten free, cereal free, egg free..... now plus redmeat free. This is a hard one. I love my beef steak! more than eggs.

The redcross refused to take my blood and advised that I have to wait for another 120 days because I travelled to a Malaria infested country. I only went in for a day trip for lunch and shopping , now I am barred from blood donation, Sigh!!!!

Last year, my teeth were hurting and shaky too. One back molar even fell out. So I begin doing my home remedy treatment, diligently. I use clove oil to stop the pain and paint my teeth and gums with hydrogen peroxide 10%. It works, the gums healed, plagues removed and cleaned. The teeth stops shaking, now strong and healthy again.

I started this journey with HH Ferrin level at 800. The next time I got tested I was at 900. I could not give up red meat or pork. I now soak red meat or pork in tea or coffee over night (Garrison, 2008). Some times I bread it with oat flour. Now my HH Ferrin is 50. I hate that they throw the blood after Phleb in the garbage.
Garrison, C (2008). The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. Cumberland House Publishing.