Heart palpatations are one of the symptoms that never went away for me. I have them atleast once a day. I have gotten very used to them so they do not scare me anymore. I usually have them when i am at rest.

My Ferritin is now down to 59...I still have the heart palpitations, just not as bad as they used to be.

I have at least one episode of heart palpitations per day. I never get used to them unfortunately, its one of the symptoms that seems not to have diminished since seeking treatment. Curiously, I had a pronounced episode yesterday in the air while flying on a 12 hour flight, (calm, no turbulence, biz class, comfortable) has anyone else experienced palps while flying?
GageL

I am flying to Alabama on thursday for a softball tournament, I will let you know if it happens to me on the plane or not.

I live in Alabama!

And I have had to travel lately but I don't remember any palpatations.

Well im glad I'm not the only one who still has these- Thanks ladies and gents I was getting a bit worried.

Well I have flown to Alabama and I had no heart palpatations on the plane and i also did not set off any metal detectors, thank god. Strype it is way hotter here than I am used too. :-) and you have really big spiders here.lol

Hi, just joined the group after reading the discussions all year. I was diagnosed early 09 with ferritin of about 800 I think, I've had about 8 phlebs and the fatigue went and so did the heart palpitations. Its been 3 months since the last phleb and fatigue is coming back but no heart palpitations yet.

Might want to check out the Arrhythmias group regarding palpitations, also known as preventricular contractions (PVCs) and preatrial contractions (PACs). They are usually nonpathological; you can have thousands of them in day and be perfectly fine. They can come and go, you might have them for a week or months and they go away but can return. My current run has been going since last December or thereabouts, and have had over 20,000 per day on some days(based on extrapolations). Should avoid caffeine and energy drinks (ie Red Bull) as these exacerbate the PVCs and PACs. I say should avoid, but I don't...still have my 2 to 4 cups of coffee per day.

Yes Gidget we have lots of spiders and humidity!

Thanks kukufxr! That makes me feel much better seriously- I'll check that group out!

I was wondering what heart palipitatiosn really feel like. I have hemo and was diagnosed a little over a year ago. I was 24 at the time. My iron was through the roof and the fatigue was so bad I thought for sure I was chronically ill and near death. My heart feels like it flutters sometimes, and I struggle to get a good breath of air in. Also, I have pain in the left side of what feels like my heart, though I can't be too sure. It feels as if someone is just pinching a nerve in there or something. Sometimes my heart races. Sometimes it feels like it is going to pound right out of my chest. Other times it just seems like it is off beat. Are these palipitations? Or something eles?

Any advice or shared storied would be great! Anyone else experience anything like this?

Thanks!

-Sally

I have them daily, they only last a couple of seconds and I do not get short of breath, My heart pounds hard but not fast, if that makes any sense. During the few seconds my chest feels strange, like it is empty, hard to put into words. they are not painful at all.

Mine are described just as Sally put it. Sometimes it's not bad, other times it feels like I can't breath, and other times I feel a bit of angina, but I can't be sure if its angina or something like gas lol.

Strype
Had the heart palpitations when ferritin levels were higher. I started at 453 ferritin. How is your TSAT? My TSAT was higher when I had the palpitations. Though doctor hasn't mentioned how high my TSAT was when I started. My liver felt enlarged.

I had 12 weeks of phlebotomies from April to September. In September I tested at 65 ferritin. I haven't experienced any palpitations since April. Maybe they are related to the ferritin levels. My next visit is October 27th. Dietwise, I have really cut back on heme iron. I eat mostly white meats, whole grains, vegetables and fruits. I allow for about 4 oz. of red meat a week. I have taken up aerobic exercise to see if it will help keep the iron in check. I figure if I'm breathing then the oxygen is helping the iron get used in my body. I am reading about women athletes and how they deplete their iron stores by exercise. I figure if exercise makes athletes anemic then exercise could deplete the iron stores in blood and tissues in HH patients in much the same way. I don't know if there is any scientific merit to the whole idea.
The iron in our blood carries the oxygen to our tissues and the result is sweat (which rids our bodies of iron) and CO2.

from: http://dietary-supplements.info.nih.gov/factsheets/iron.asp
Iron and intense exercise:

Many men and women who engage in regular, intense exercise such as jogging, competitive swimming, and cycling have marginal or inadequate iron status [1,81-85]. Possible explanations include increased gastrointestinal blood loss after running and a greater turnover of red blood cells. Also, red blood cells within the foot can rupture while running. For these reasons, the need for iron may be 30% greater in those who engage in regular intense exercise [1].

Also this site talks about the iron and the heart.
Hope this helps.