Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
Nic. X
my kids still won't get tested. i pleaded and begged but they just pass it off. oh i'll get it next time i see the doc.... my kids are 32 and 26 x 2, i have twin boys. they are adults so you cant make them do anything.
thanks for sharing strype. this group has helped me also. i was scared shitless until i found these folks.. they have the knowledge base and have all dealt with hh. and we are all caring folks from all over this tiny world.
dc
I constantly spread info about HH to everyone I know to get tested!
My daughter came back with 1 c282y gene and so far is a carrier my son has atleast 1 gene as well I have 1 c282y and 1 H63D, it is an awful disease that can make you very sick very fast. I have also told all my family some have been tested others just choose to ignore me, which is sad because even tho most of them are in there late 20's early 30's if they have it they will find out when they are sick and that is a shame because they could of caught it earlier after being told it is in the family.
*sigh* oh well nothing you can do except pass on the information.