Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
In December, I crossed twenty years of Phlebs! Now 68 and still breathing. It has been a journey, both before and since learning that I had HH.
My biggest challenges, are the ongoing fatigue and major amounts of arthritis in my joints. I also have a back condition, spondylolysthesis, so am uncertain exactly what has caused the damage. Because I now have end stage arthritis in my shoulders also, I think that the HH has really aggravated the condition.
Still enjoy a few glasses of wine each week, watch my weight, am somewhat fit and hope to live another twenty. Carpe Diem, live in hope!
My biggest challenges, are the ongoing fatigue and major amounts of arthritis in my joints. I also have a back condition, spondylolysthesis, so am uncertain exactly what has caused the damage. Because I now have end stage arthritis in my shoulders also, I think that the HH has really aggravated the condition.
Still enjoy a few glasses of wine each week, watch my weight, am somewhat fit and hope to live another twenty. Carpe Diem, live in hope!
Haven't visited the site in a while. Glad to see you are still here. Thanks.
Thought I'd write that info, since we are all so afraid,and anxious upon discovery of this disorder. After a while, as you know, the phlebs just get woven into our schedules, and we accept that they are keeping us alive and much healthier than before. Take care.
You sure do have that right, it is just part of life now and I don't think a thing about it. I have to be phlebbed once a month because I load quickly and everything,lol but I don't care because I feel great and it is saving our lives.
I've a long way to go to match you guys, I'm less than 5yrs worth of phlebs.
Stay healthy!
And you too, Ferr. Keep the faith, get plenty phlebs.