Heart Failure Support Group
Heart failure is a condition that can result from any structural or functional cardiac disorder that impairs the ability of the heart to fill with or pump a sufficient amount of blood throughout the body. It is often undiagnosed due to a lack of a universally agreed definition and difficulties in diagnosis, particularly when the condition is considered "mild."
44 years old, heart attack mid-October, 48/46 EF ?
TD99
Hi everybody, I've been reading this board for several weeks and I wanted to go ahead and post my story. I hope to get some feedback, advice, etc. I was not sure whether to post this to the heart attack or heart failure forum, so I guess I will do both. I hope that is ok.
I am 44 years old, I've always been athletic, not overweight, never smoked or drank alcohol. In mid-October, I had a heart attack. At the local hospital, they put a stent in but the artery was "large" and they didn't feel good about it so they flew me to a major university hospital. That evening, the stent became blocked with a blood clot and they took me back in the cath lab. They decided not to remove the blood clot from the stent because they were afraid it would go somewhere else and kill me. So the stent remained blocked and I lost/damaged about 10-15% of my heart. The doctor said that unless another clot forms and causes another heart attack then I should be okay for a normal lifespan. The large artery was apparently what caused the heart attack, the large artery was something I was born with although I had no idea. In the hospital, my troponin level was 30, which the doctor said indicates a relatively "minor" heart attack; but I have no clue about troponin.
When I left the hospital (mid-october), my EF measured by echo was 48. 6 weeks later (last week, early December) I went back for my check-up with my cardiologist and he had an MRI performed to see how my heart was healing, etc. and the MRI measured my EF at 46. The cardiologist says I can live a normal lifespan if I do my cardiac rehab (I'm already about half way through that program), eat right, and take my meds. He said the MRI of course showed the roughly 10-15% permanent damage to my heart due to the stent blockage, and showed a little plaque but nothing abnormal or remarkable for my age, other than that the MRI was fine.
I have his opinions and thoughts, now I would like some information from folks like me who are actually going through conditions like this.
1. My EF measured by echo was 48 in mid-October, when measured by MRI in early December it was 46. My doctor says that he is pleased with the number and that it should go up. He says the reason for the two different EF numbers (6 weeks apart) is probably just due to different methods of testing (echo vs.MRI).
Does anyone have any thoughts on this? I know normal EF is 50+, but is 46/48 a number that I can live with?
2. I have no actual "symptoms" of heart failure. The cardiologist or anyone else has never told me I have heart failure, just likely coronary artery disease. But I am assuming I do since my EF is reduced and there is permament damage to the 10-15% of my heart.
3. They say that heart failure is a progressive disease. Does that mean that I am destined to eventually get worse no matter what? Is my EF destined to eventually start decreasing at some point in the future? Or can I either improve or at least not get any worse?
4. With the regards to the damaged part of my heart (Dr. says it's about 10-15% of the heart), the cardiologist said "don't worry about that part of the heart; it is gone...but thankfully you don't need it". He said that if you have to have a heart attack with heart damage that mine was in exactly the right area of the heart and I should be thankful for that. Can I actually believe him on that?
5. He said we just need to try to prevent any future blood clots from that large artery (which was stented and then the stent blocked). He is hopeful the plavix and aspirin will offer me some level of protection against a possible 2nd heart attack due to the large artery.
6. The medicine I am on is 12.5 metoprolol twice daily, 5 mg lisinopril once daily, plavix, aspirin, and atorvastatin. He says that my blood pressure, etc is all great so he wants to be cautious with the medicine. He says these meds should help my heart to do "positive remodeling" and limit the negative remodeling. Any thoughts on these meds?
I am also taking 400 mg Q10 and 100 mg magnesium supplements.
7. When asked about dietary restrictions, he said that there are no specific restrictions for me but I just need to keep eating right and be sensible about salt. Although he did not actually tell me to, I've been trying to stay under 2g salt a day. I read that online but he didnt give me any real restrictions.
8. Here is the big one for me. The dr said that the best-case scenario is that there are no more heart attacks, and if that's the case then I should recover and be fine to live a normal lifespan. I am 44, my wife and I have a wonderful son who is 6 year old and I desperately want to alive and active to see him grow up and go to college. My son is my whole world. My doctor has told me repeatedly that I can life to be 70 (or beyond, that was just a number he threw out there) with this disease. Is that really true? That is 26 years from now! Is he just telling me that? I've asked him to be honest and he says he is. Do you guys have any thoughts on this? Honestly.
Thank you all so much for taking the time to read this and respond.
Physically, I feel really good, in fact I feel almost as good as I did before the heart attack...other than getting tired easy...which I hope will improve. I'm back to work, working out, etc. The doctor says that it's only been 7 weeks since the heart attack and I should continue to heal up and feel even better.
Just wondering if this is something that will eventually start to get worse.
Thanks everyone very much.
I am 44 years old, I've always been athletic, not overweight, never smoked or drank alcohol. In mid-October, I had a heart attack. At the local hospital, they put a stent in but the artery was "large" and they didn't feel good about it so they flew me to a major university hospital. That evening, the stent became blocked with a blood clot and they took me back in the cath lab. They decided not to remove the blood clot from the stent because they were afraid it would go somewhere else and kill me. So the stent remained blocked and I lost/damaged about 10-15% of my heart. The doctor said that unless another clot forms and causes another heart attack then I should be okay for a normal lifespan. The large artery was apparently what caused the heart attack, the large artery was something I was born with although I had no idea. In the hospital, my troponin level was 30, which the doctor said indicates a relatively "minor" heart attack; but I have no clue about troponin.
When I left the hospital (mid-october), my EF measured by echo was 48. 6 weeks later (last week, early December) I went back for my check-up with my cardiologist and he had an MRI performed to see how my heart was healing, etc. and the MRI measured my EF at 46. The cardiologist says I can live a normal lifespan if I do my cardiac rehab (I'm already about half way through that program), eat right, and take my meds. He said the MRI of course showed the roughly 10-15% permanent damage to my heart due to the stent blockage, and showed a little plaque but nothing abnormal or remarkable for my age, other than that the MRI was fine.
I have his opinions and thoughts, now I would like some information from folks like me who are actually going through conditions like this.
1. My EF measured by echo was 48 in mid-October, when measured by MRI in early December it was 46. My doctor says that he is pleased with the number and that it should go up. He says the reason for the two different EF numbers (6 weeks apart) is probably just due to different methods of testing (echo vs.MRI).
Does anyone have any thoughts on this? I know normal EF is 50+, but is 46/48 a number that I can live with?
2. I have no actual "symptoms" of heart failure. The cardiologist or anyone else has never told me I have heart failure, just likely coronary artery disease. But I am assuming I do since my EF is reduced and there is permament damage to the 10-15% of my heart.
3. They say that heart failure is a progressive disease. Does that mean that I am destined to eventually get worse no matter what? Is my EF destined to eventually start decreasing at some point in the future? Or can I either improve or at least not get any worse?
4. With the regards to the damaged part of my heart (Dr. says it's about 10-15% of the heart), the cardiologist said "don't worry about that part of the heart; it is gone...but thankfully you don't need it". He said that if you have to have a heart attack with heart damage that mine was in exactly the right area of the heart and I should be thankful for that. Can I actually believe him on that?
5. He said we just need to try to prevent any future blood clots from that large artery (which was stented and then the stent blocked). He is hopeful the plavix and aspirin will offer me some level of protection against a possible 2nd heart attack due to the large artery.
6. The medicine I am on is 12.5 metoprolol twice daily, 5 mg lisinopril once daily, plavix, aspirin, and atorvastatin. He says that my blood pressure, etc is all great so he wants to be cautious with the medicine. He says these meds should help my heart to do "positive remodeling" and limit the negative remodeling. Any thoughts on these meds?
I am also taking 400 mg Q10 and 100 mg magnesium supplements.
7. When asked about dietary restrictions, he said that there are no specific restrictions for me but I just need to keep eating right and be sensible about salt. Although he did not actually tell me to, I've been trying to stay under 2g salt a day. I read that online but he didnt give me any real restrictions.
8. Here is the big one for me. The dr said that the best-case scenario is that there are no more heart attacks, and if that's the case then I should recover and be fine to live a normal lifespan. I am 44, my wife and I have a wonderful son who is 6 year old and I desperately want to alive and active to see him grow up and go to college. My son is my whole world. My doctor has told me repeatedly that I can life to be 70 (or beyond, that was just a number he threw out there) with this disease. Is that really true? That is 26 years from now! Is he just telling me that? I've asked him to be honest and he says he is. Do you guys have any thoughts on this? Honestly.
Thank you all so much for taking the time to read this and respond.
Physically, I feel really good, in fact I feel almost as good as I did before the heart attack...other than getting tired easy...which I hope will improve. I'm back to work, working out, etc. The doctor says that it's only been 7 weeks since the heart attack and I should continue to heal up and feel even better.
Just wondering if this is something that will eventually start to get worse.
Thanks everyone very much.
The meds you are on are reasonable for your situation. Cholesterol and blood thinners sound about right for your current situation. Exercise and stay healthy!
I am not going to blow smoke either, there is always a chance it could go bad at any time, try not to worry about that part because it's really not in your control. What you can control is the reduced chance of it happening.
Spend a long life with your son!
I hope you are well and continue to be well for many years!!!
You sound like you came through it very well. I doubt you will feel much different post heart attack than you did pre heart attack. Maybe some more fears, but really try not to worry. Just do what you are supposed to and spend time with your family and enjoy yourself with your son.
Dealing with it mentally is a huge portion of the "battle". Just do things and keep building confidence. Don't let what happened handicap you.
Thank you again :-)
I would appreciate everyone's prayers and any opinions or thoughts.