Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
I've been dealing with GD for almost 1 year. I'm currently on methimazole to get my numbers w/in normal range so that I can do the radiation treatment, but lately I have been considering surgery as an option. Every time I google the surgery all I see are the major in patient ones with the big scar, but my friend said his mom had surgery done and it was outpatient. Can you tell me how your surgery went? If I can have the type you did then I may consider as a more definitive option. The issue is that my husband and I really want to start a family ASAP, but my thyroid is getting in the way of that so we decided to do radiation, but even then we have to wait at least 6 months to have children.
thanks!
My surgery went great overall and I had a total thyroidectomy. I was really nervous about the surgery because I had met someone before who had it and his scar was big. But then I realized his surgery was done many years ago, so I figured by now the procedure must be different. I was also nervous because it was my first surgery.
One of the doctors I saw recommended surgery over the radiation (because of my eyes). Another one recommended the radiation over the surgery(he is more of an old school doctor). A different one said it was up to me. I decided on the surgery because of experiences I read online, plus because it just made more sense to the surgery over the radiation in my position.It made a huge difference that I was able to find a surgeon that specifically does thyroid surgeries. I met him and had a consultation in which we spoke about the surgery and his previous experiences. The fact that he was so experienced and he knew what he was talking about gave me a whole lot of confidence.
The day of the surgery I was extremely nervous, and had moments were I would second guess myself. But ultimately, I knew this was the best for me. We got to the hospital around 6:30 AM and left the hospital at 1 PM the same day. The surgery itself lasted about an hour. The worst part was the discomfort I felt because of the breathing tube, not because of the surgery itself. I did throw up after like 30 minutes after surgery, but they said this was normal (side effects of the anesthesia and the fact they gave me ice and a popsicle to help with the discomfort on my throat because of the breathing tube). Everything went smoothly and normal.
The recovery was fairly easy. The first two days I mostly spent it sleeping because of the pain killers. I ate yogurts, apple sauce, soup, and breakfast shakes. Once again, the worst part was the fact that the pain killers don't really help with the discomfort of the breathing tube. But whenever I drank or ate anything cold it would help. I can't remember if it was the third or fourth day when I started to get up from the bed and move around. The only thing was that I couldn't move my neck normally. Which as days passed got easier and easier. I went back to work one week after surgery. But I think I would have been able to go earlier if necessary.
My scar is small, and it isn't very noticeable at all. And from pictures I've seen online, if I keep using the scar therapy gel (mederma) it will keep getting better.
Overall, I am very very happy with my decision and how everything went.
If the TSI thyroid antibodies are positive, the TED (Thyroid Eye Disease) runs its own course. Once the TSI comes down, the TED improves.
The TSI can stay up high with surgery or RAI.
Anxiety symptoms are likely due to the thyroid levels of the Free T3 and the Free T4 not being in the 'right' places to feel best there at. Mid range for the Free T3 and the mid to the upper third range for the Free T4.
Surgery and RAI are dependent on replacement meds so if the 'right' amounts are not taken, symptoms can continue making the person feel worse.
I would check out livingwithgravesdisease.com at the Thyroid 101 and also elaine-moore.com to read of articles and do researches to stay proactive with the autoimmune disease. We have this for life.
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I was warned that it does that time for them to get back to normal.
I wish you the best! :)
Thanks for checking in and updating on how you are doing. :-)
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Here are some dates with my levels: my thyroid storm happened Feb 23-27th
2-23-17
T3
T4 6.09
TSH <0.005
2-25-17
T3 18.68
T4 5.26
2-27-17
T3 11.77
T4 3.36
2/22/17 hospital for two nights
t3 2.28
t4 .29
tsh <0.005
Going today to get labs again for Endo appt on Monday
Thank you for the lab results, we would need to know the lab reference ranges as each lab company used are different. Also factor in where one is from, their ages, etc.
Keep in mind that if thyroid antibodies tests positive there really are no 'quick' fixes to deal with thyroid issues as we have this for lifetime.
If you could post your update on a new thread/post after getting your latest lab results back and what meds you are currently on and how much?
Ask for the TSI and TRAb thyroid antibodies tests to see where these numbers are at.
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