Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Please be aware if you are taking Fosamax(Bone meds) as it has now been all over the news & i was just taken off of it & put on new bone meds & i had been on it for years & i was just put thru my I- 131 radio - active idione treatment & now my 3rd pet scan that was totally different from the last 2 was suppose to be on special foods but couldn't hardly eat anything due to chrionc nausea & pain & wasn't suppose to have nothen 12 hours prior to it.
It was a full day at hospital from 10:30 - 6 pm as they had hard time getting needle in arm then they had to use a huge one to get blood & the dye they had to put in 2 different times then laying on tiny table for along time, the the machine stopped so had to go back into room & wait. thought they were going to have to re do it another day but they finally got it up & then another hour on it, reason Dr put me thru it again is my Thyoblgen number isn't down to 5 or below its clear up in the 80's & i wasn't suppose be seen until the end of this month & i have been seeing Chrio to help with my sereve pain in neck & back & hips etc... getting worse, can't sleep hardly eat etc... my Dr just changed my Bone meds & i don't what made me record the news the other nite but i'm sure glad i did as they were talking abt women being on it for years & one lady broke one femur & other lady broke both of her femur's & i called my Chrio & told him & today when i saw him he had looked it up & said i had all the symptoms on the list , kept trying to say this is not the normal pain u have its down in my bones & hurts bad & i was told i'm doing this on purpose i don't see how i can be.I have it on tape now & called my Endocrinology & told him what i have heard & he just got my results & now i'm going to see him by myself first thing in the morning, so hopefully now he & my chrio & family Dr can try & help the pain, no one here at home knows how much pain i have been dealing with as there the ones who said i'm doing it on purpose & i really need the support right now & if i can help just one person with my story of all i have been going thru with my health for years, it will make my day as i don't want to see anyone go thru .what i have been going thru. please pray that the results will be ok, I'm trying not to me scared but with the amount of sereve pain i have been in i'm very worried.
Love,
Angel
It was a full day at hospital from 10:30 - 6 pm as they had hard time getting needle in arm then they had to use a huge one to get blood & the dye they had to put in 2 different times then laying on tiny table for along time, the the machine stopped so had to go back into room & wait. thought they were going to have to re do it another day but they finally got it up & then another hour on it, reason Dr put me thru it again is my Thyoblgen number isn't down to 5 or below its clear up in the 80's & i wasn't suppose be seen until the end of this month & i have been seeing Chrio to help with my sereve pain in neck & back & hips etc... getting worse, can't sleep hardly eat etc... my Dr just changed my Bone meds & i don't what made me record the news the other nite but i'm sure glad i did as they were talking abt women being on it for years & one lady broke one femur & other lady broke both of her femur's & i called my Chrio & told him & today when i saw him he had looked it up & said i had all the symptoms on the list , kept trying to say this is not the normal pain u have its down in my bones & hurts bad & i was told i'm doing this on purpose i don't see how i can be.I have it on tape now & called my Endocrinology & told him what i have heard & he just got my results & now i'm going to see him by myself first thing in the morning, so hopefully now he & my chrio & family Dr can try & help the pain, no one here at home knows how much pain i have been dealing with as there the ones who said i'm doing it on purpose & i really need the support right now & if i can help just one person with my story of all i have been going thru with my health for years, it will make my day as i don't want to see anyone go thru .what i have been going thru. please pray that the results will be ok, I'm trying not to me scared but with the amount of sereve pain i have been in i'm very worried.
Love,
Angel
I am glad you hwere able to post this.
I have you in my prayers and I hope they are able to get this reversed so the pain is gone for you.
You have gone through so much and I worry about you all the time.
Don't give up!! Keep going there are better times ahead now that you know what is causing the pain and most likly some of your other symptoms too.
Hugs and Loves
Angel