Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
This is so frusting when i'm trying to post & my computer just shuts me down & i don't know how to save what i have wrote, let's try this again, i went to my Endocrinology today as it has been over a year as my husband had canceled my last treatment on me, first time i have ever walked out of my DR office as we had it all set up to go thru my Radio- Active Idione treatment as he didn't like it that i went by myslelf well i just did again today & i'm suppose to go thru it all next week to find out what is causing all my pain & chronic nasuea 24/7 & they all think i'm doing it on purpose you think i like feeling like this not at all.
Sorry i shouldn't be doing this i am trying real hard to just take care of me but so much has happened & still is & i'm not suppose to say a word here & no one is talking to me, feel like not getting any support at all & it hurts to go thru this all alone, i'm tired of being quiet but i don't want to put it on anyone else.
I know something isn't right to have to feel like this & not getting any sleep & keep losing weight can't eat etc....
need prayers please.
Angel
Sorry i shouldn't be doing this i am trying real hard to just take care of me but so much has happened & still is & i'm not suppose to say a word here & no one is talking to me, feel like not getting any support at all & it hurts to go thru this all alone, i'm tired of being quiet but i don't want to put it on anyone else.
I know something isn't right to have to feel like this & not getting any sleep & keep losing weight can't eat etc....
need prayers please.
Angel
If you like go, to http://www.livingwithgravesdisease.com and see if there's any thyroid cancer survivors who can connect with you.
Also try http://www.elaine-moore.com and connect by asking Elaine, who has over 30 years of experience on thyroid health how to help you.
{{{hugs}}}
I want to let you know you are not alone. We are all here to help you as much as we can. There are a lot of us that only have forums to help them as there families don't want to.
Have you had your raidio active Iodine treatment yet?
Here is something I would like you to do. IT might help to see if your nasia and stomach pain is caused by somethign you are eating. I want you to make a food diary. Write down what you ate and how you felt about an hour or so after you ate. Make sure you do it for the things you drink too. After a few days you should be able to see what you can eat and what you can't eat with out causing pain and nausia. Every one is different so different foods will act differenly to different people.
I can drink milk, some people with GD can't. So we are all different, so you will need to see what works for your body. I know things are hard right now for you, but this step will help you to be able to eat with out discomfort and then hopefuly you will be able to sleep better too.
{{{HUGS}}}}}
Angel
P.S. I worte you if you where able to get it. I know computer problems are annoying.
I will go right now and pray for you! I have found that my family just doesn't "get it". they think it is a disease and the doctor will give me meds and it will be ok. That's why I like this forum. You can vent and the people actually know how you feel and can offer support.
I like the idea that AngelT gave about the food diary. One other thing that will do for you is give you a sense of "control". That is it makes you proactive with your symptoms so you don't feel so much like the victim. You are fighting back in a way.
I think I can speak for everyone here when I say that we don't mind if you need to vent. We are here for you!
Unfortunately thyroid disease and its symptoms are not taken very seriously by our families and medical community. Here is a link that may help your family to understand
http://home.rica.net/deecee/information.htm
Copy this and give it to your family and friends..perhaps this will help them understand better. Big Hugs...Kathy