Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Hi all,
I appreciate your insight. I've not been feeling right so did a 6 week lab rather then 8 weeks.
Trouble sleeping, feeling hyper regardless of food intake, just off, if you know what I mean oh
yeah and hot flashes again.
Dr wants me to go back to 1.25 mg of MMI daily until I see him June 7 - that is 10 weeks from now. I have been taking .625 mg MMI since 12/5/12
Here are the labs:
TSH .056 3/26 range .056-4.20
.146 2/12
.33 12/5/12
FT3 3.32 3/26 range 2.5-4.3
3.45 2/12
not taken before 2/12
FT4 1.31 3/26 range .71-1.7
1.15 2/12
1.24 12/5
Dr and I correspond by email since I see him in person twice a year. My response to the suggestion of increasing meds was I'd have to think about it and gave him my position on medicating to the TSH vs antibodies, etc - you know the conversations all too well. I also told him I did not want to create a drug induced TSH and go off the medication prematurely and go through all of this again.
My instinct is to go to the 1.25 for a few weeks and see if some of the symptoms stop and then maybe have a lab draw at 5 weeks to see how things
are going. I really just am unsure how to proceed
but really know I'm not feeling quite right either. Maybe just giving it time is still the best option and stay on the .625 mg per day.....
Thanks for the help....Ugh, I was so hoping I'd be in true remission, yet it I'm just not sure I trust any of it at this point....:)) For those who don't know I've been at this since June 2011.
Blessings,
Cindee
I appreciate your insight. I've not been feeling right so did a 6 week lab rather then 8 weeks.
Trouble sleeping, feeling hyper regardless of food intake, just off, if you know what I mean oh
yeah and hot flashes again.
Dr wants me to go back to 1.25 mg of MMI daily until I see him June 7 - that is 10 weeks from now. I have been taking .625 mg MMI since 12/5/12
Here are the labs:
TSH .056 3/26 range .056-4.20
.146 2/12
.33 12/5/12
FT3 3.32 3/26 range 2.5-4.3
3.45 2/12
not taken before 2/12
FT4 1.31 3/26 range .71-1.7
1.15 2/12
1.24 12/5
Dr and I correspond by email since I see him in person twice a year. My response to the suggestion of increasing meds was I'd have to think about it and gave him my position on medicating to the TSH vs antibodies, etc - you know the conversations all too well. I also told him I did not want to create a drug induced TSH and go off the medication prematurely and go through all of this again.
My instinct is to go to the 1.25 for a few weeks and see if some of the symptoms stop and then maybe have a lab draw at 5 weeks to see how things
are going. I really just am unsure how to proceed
but really know I'm not feeling quite right either. Maybe just giving it time is still the best option and stay on the .625 mg per day.....
Thanks for the help....Ugh, I was so hoping I'd be in true remission, yet it I'm just not sure I trust any of it at this point....:)) For those who don't know I've been at this since June 2011.
Blessings,
Cindee
It looks like that your FT4 is rising which corresponds with the uncomfortable symptoms you are describing.
Apparently it looks like you might be one of those people who do better with their FT4 at mid range and not at the upper third of range. I fall under this category.
Going back on 1.25 mg seems ideal.
{{{hugs}}}
I've been taking the MMI in teensy doses since initially starting them on higher doses in 2003. I'm coming up for my 10th anniversary on them.
{{{hugs}}} :-)
Thanks, that's what my "gut" tells me to do. I had 8 weeks between the Dec lab and the Feb lab that I felt absolutely normal - totally symptom free so hit my "sweet" spot in there somewhere....wish I knew exactly what it was but have been really "feeling" it the past 2 weeks - the plus side is that I've been able to lose a couple of pounds and of course wonder if it's from the exercise intensity increase or because the FT4 is up....If I had to guess probably the FT4. Really would like to drop a couple of more before increasing meds....LOL Such a crap shoot isn't it??
I appreciate your voice of reason and I know you've been there so that's why I ask and respect your answer so much.
I just want to lose the hot flashes that is the one thing I am so incredibly tired of - have them if I drop a bit "hypo" and have them if I'm a bit "hyper" ugh....I know complain, complain complain...LOL
I am grateful to be where I am. It certainly could be a lot worse.
Guess Dr and I will "discuss" it further in June and we should have a pretty good reading since it will be 10 weeks. If I get to feeling
hypo- then I will drop back for a bit , Now if the Dr will agree to let
me be.....:)))
Thanks again!!!!
That's the part I think that is the hardest, Not being able to trust your Dr.....I really wish I could find that "gem"......:(