So sorry you are having problems.

Your thyroid levels sounds like these are off. If you post your labs with the ranges and what meds you are on, we can try to figure out the next steps together with you.

{{{hugs}}}

Thanks but I'm not sure of my results they change so often my Endo dosent even know what's going on! He says a have a rare form of graves!! All I now is I was very hyper then I went very hypo my TSH was 100 then I came off carbimozole and i went hyper again now I'm back on it! But thanks anyway I'm just feeling sorry for myself il be ok :)

It is good to feel sorry for ourselves every now and then. Please do post your labs. It is your right to get a copy of them from the doctor. The guys on here are very good at help I g you figure it all out. I was told i had graves in march of 2011 and since then have been on four different doses of medicine. Started at 40mg,20,10,5 and now back up to 10mg. But my hair is not falling out now and my legs and arms don't bother me as bad and that is a blessing itself. It does get better but with time and the right doctor and good friends.

It sounds like your doctor has 'jerk' you around with the ups and downs and mismanaging of your thyroid levels.

Slow and steady wins the race here. This means frequent labs every four to six weeks is a must. Then slowly reduce the ATD (antithyroid drug) until the 'right' dosage is found to hold you 'nice and steady'.

Please read here of all old threads/posts. This way you understand what you need to do to be proactive with your thyroid health. Your doctor isn't the one to do this for you. You have to take the steps yourself to help yourself.

{{{hugs}}} :-)

Yeah u guys are great at making me feel better u all know how I feel trying to explain to someone who dosent have graves just sounds like I'm moaning all the time,my legs are so bad I can't manage stairs and I'm only 30 and look like an elderly lady trying to get up I weigh about 9 stone so not really overweight bit I'm only 4"11 then I have my coccydynia (tailbone pain) which is agony at the min especially in the night which they can't fix till my graves is sorted :( but hey there is always someone worse off than yourself so I have to look at it like that thank you all it really helps to talk to u all :)) xx

I know the feelings.

I have Rheumatoid Arthritis and am in the scooter/wheelchair 90% of the time. I got this way when my thyroid problem, Graves' Disease made it worst for me. I had dipped hypO so bad and was held there like that for nearly a year. Then within a month I found myself using the scooter/wheelchair.

My kids say I went from walking one day to no walking overnight. During those times were a blur for me, because I was so ill and just sat in the recliner chair all day and night.

Don't worry, just go get copies of all your lab results, how much ATD you were on every time, and we'll help you figure things out.

{{{hugs}}} :-)

Hi faceache...here is a link to our Graves Disease General Info...you may want to read through the posts...there is some really good info there. Education is the key to feeling well with Graves. I agree with mmz...your doc sounds like he's not that informed on treating this disease. Its really hard to find a doc that does...but they are out there. What you experienced is the yo-yo effect. Your supposed to taper of ATD's not just quit....thats probably why you went hyper again. Post your next labs along with the lab ranges when you get them...there are lots of really informed people here to help...Big Hugs...Kathy

Ooops...here it is...lol

http://www.dailystrength.org/groups/graves-disease-general-info/discussions

@dairytech thank you I will have a read, iv never asked for my results before but after I joined here u all sounded so up on ur condition so I asked for my last results but couldn't make head more tail of them :( which left me more confused il have another look at the and see what I can make out thank u once again :)

Ok all I can make out is my TSH was 1.45 mU/L and my free T4 was 19.6pmol/L but there's no free T3 result my liver function was total protein 63g/L alkaline phosphatase 73 U/L albumin 45g/L bilirubin 8umol/L ALT 7 U/L anyone make sense of that lol and I don't know what SFC means?

Please post the lab ranges to go with the labs done. Lab ranges are different depending on where you come from, the different lab companies used, your age, etc...

{{{hugs}}}

Staying positive ...Moi? Not really at the moment. And my case isn't by far not as bad as you describe it.

I just pretend very well, keep that stupid smiley thingy on "excelent mood", I refuse to give in totally to how I feel, and if I want to have a bit of a self pitty party I just give my self a time limit.

I stay active, love my new found Bikram Yoga, stay away from annoying people, eat well and tell my self: Slow and steady ... give it time, healing will come. I try to always remind my self of the good things this thyroid trouble has given me. I found yoga, I learned to be more patience, I am more "in the moment". I remind my self that I am pretty awesome for despite not feeling well on and off, in general people will never know ( I do not talk about it with anyone, that's why I am on this board) and I have continued life and enjoy most of it.

Without sounding like some kind of cult guru, but I believe that to a certain extent you can use your mind to sort of "overscream" what is bad with good. Now, faceache, I do realize my case is not as bad of some people and gosh ... a good self pitty party on occasion can be very healing too. So let it all out!

Anti depressants .... I used to work with some high end psychiatrists in Malibu and LA and learned ALOT from them. I think AD are a very useful medicine to alter chemicals in your body when they are making you feel bad. But in your case, I would first make sure that my thyroid levels were nice and level where they are good for you, like Dairy and mmzt trying to guide towards. Then you have ruled out that your mood is not down because of a different cause and you are not masking the real issue.

Also ... what you are going through is damn hard. Feeling down and bad from it, is a very difficult but neccesary coping emotion. Unless you are stuck in it, you might need to experience it.

And last from my experience: When I feel physically weak, I also get more insecure. And like you, I sometimes wonder why my husband wants me. Although physically I have not changed much and think I am still a hot mama LOL, in my head I feel like a whiny drag. This sounds so cliche, but I do think it is the truth: He loves ME, who he knows I am. He also loves the current me, and how I handle things. He is in awe of my strength, even if it is through my weakest moments. If your financee truly loves you he will see YOU, in all your glory, even if one eye is not as perfect. Ask him, ask him for confirmation about why he thinks you are still gorgeous.

And totally: participating on this forurm and recieve and give support helps tremendously in keeping the attitude high!

I can not give you any promisses but most likely you will be okay again, like many here and you will be able to say that you overcame this! That is waaaay more of an accomplishment then being pretty and lucky your whole life.

Okay, done pep talking.

Nathalie

@nathalie what u just wrote to me is the best reason I joined something like this it felt like u just put it arms around me,gave me a big hug and said everything is gonna be fine :) who would have thought some words on a screen from someone across the world could make u feel better but u did a lot so thank you! XX

Anytime girl! Hang in there, keep sharing here and chances are that things will be lots better!

I was later thinking how cruel teenagers can be. They have the sensitivity of a male Neanderthaler, sometimes. You should feed your daughter an overdose of caffeine, get her infected with a huge pink-eye infection, shave patches of hair out and asks how she feels ... then take her to the mall and totally act embarrased.

Just kidding.