Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Ok, so I have found out that Endo Offices things move slow. For the waiting patient its a drag but when your the patient and the doc takes almost an hour and 1/2 with you its a good thing. He was very nice and thorough. He let me talk and tell the story leading up to my symptoms. He did a exam very indepth more than the family doc does.
He laid out the options and stated that he has no interests in one vs the other. He stated I have Graves with 2 long words and thyroiditis (hosimotos) I believe he said was the long words. I'm a little confused as to how I can have both. He explained in detail how everything works and even drew a diagram! It was a little overwhelming most I understood. He went off on a couple bunny trails but it all had to do with the thyroid and topic at hand so I didnt care. There was even another doc somewhere that called him for advice on a patient.
In the end he did not push RAI!!! I told him I dont want it. He said at this point that is fine. He said surgery is usally a last resort and for emergencices that RAI if needed in the future is not that bad. Explained that yes stay away from kids for 4 days and can be around adults just arms length away. He said I could do nothing that the thyroid would burn itself out but you risk the chance of the goiter growing, meds, or RAI. I opted for meds. So he said he would do a small dose he believes it will help me to achieve remission. He said 50% achieve that and the others dont. He said he could do a higher doage but thinks he would have to lower me rather quickly. So, he prescriped Methalozone 5 mg 3 times a day. I knew when he said more than once a day that was good. I asked if he doses off of T4 and he said yes cause the TSH will take longer to change than T4 & T3. So I go back in 5 weeks and get a blood test prior. He said if the meds dont work then I should probably consider RAI. I dont even want to think of that but of course did and my hubby told me to just CALM down and not think about it. I know the visit, doctor could have went in that direction to begin with so I'm thankful I have this chance. So besides the Hoshi ques., those of you that did remission I know I asked before but with this med anything I should look out for besides side effects? Advise?? Thanx!!
He laid out the options and stated that he has no interests in one vs the other. He stated I have Graves with 2 long words and thyroiditis (hosimotos) I believe he said was the long words. I'm a little confused as to how I can have both. He explained in detail how everything works and even drew a diagram! It was a little overwhelming most I understood. He went off on a couple bunny trails but it all had to do with the thyroid and topic at hand so I didnt care. There was even another doc somewhere that called him for advice on a patient.
In the end he did not push RAI!!! I told him I dont want it. He said at this point that is fine. He said surgery is usally a last resort and for emergencices that RAI if needed in the future is not that bad. Explained that yes stay away from kids for 4 days and can be around adults just arms length away. He said I could do nothing that the thyroid would burn itself out but you risk the chance of the goiter growing, meds, or RAI. I opted for meds. So he said he would do a small dose he believes it will help me to achieve remission. He said 50% achieve that and the others dont. He said he could do a higher doage but thinks he would have to lower me rather quickly. So, he prescriped Methalozone 5 mg 3 times a day. I knew when he said more than once a day that was good. I asked if he doses off of T4 and he said yes cause the TSH will take longer to change than T4 & T3. So I go back in 5 weeks and get a blood test prior. He said if the meds dont work then I should probably consider RAI. I dont even want to think of that but of course did and my hubby told me to just CALM down and not think about it. I know the visit, doctor could have went in that direction to begin with so I'm thankful I have this chance. So besides the Hoshi ques., those of you that did remission I know I asked before but with this med anything I should look out for besides side effects? Advise?? Thanx!!
{{{hugs}}} :-)
ques. he did say that PTU is usally kept for pregnant women I thought there was others that took it to???
{{{hugs}}} :-)